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[cancer] Trying to be smart - Lakeshore
An author of no particular popularity

Jay Lake
Date: 2012-10-10 04:11
Subject: [cancer] Trying to be smart
Security: Public
Tags:cancer, food, friends, health, omaha, personal, work
The skin condition, and the severe photosensitivity, from the combination of Vectibix and Doxycycline is driving me nuts. Too bad for me, I guess, as there's not a lot to be done about it.

Still, the fundamental issue of fatigue is the true killer of chemotherapy.

I made it through the workday okay yesterday. Went in about an hour early, left about an hour early and finished my workday from my hotel room. The Day Jobbe got my full commitment, but by the time I was done driving back and forth, I had nothing left. My friend D— dropped by the hotel after work with some Chinese food for dinner, and some groceries for me to graze on the rest of the week, which was very helpful. (She and her friend M— will be giving me some logistical support later in the week as well.)

But I hate feeling so trapped in my body. Spoons, baby, spoons. And Shedding Day did spill into yesterday as well. With luck, that's largely over, but foolishly I had a lunch yesterday which included a lot of cheese. I wasn't thinking about my cyclical post-chemo lactose intolerance.

Smart. Be smart. Be smart about sun exposure. Be smart about skin care. Be smart about energy use. Be smart about food intake. Be smart about resting. Be smart. Be smart. Be smart.

All of that while fatigue makes me stupid and peevish and less well equipped to be smart than ever.

Cancer: it's a lousy hobby.

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Keikaimalu
User: keikaimalu
Date: 2012-10-10 14:02 (UTC)
Subject: (no subject)
Private email winging its way through the ether.

I wish you well, Jay.

Melissa
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shelly_rae
User: shelly_rae
Date: 2012-10-10 16:24 (UTC)
Subject: (no subject)
It would be so much easier if we could just sit and wallow in the cancer but that way lies madness too. I find it impossible to remember all the things and use my iPhone and Siri to remind me, I've grown to loathe Siri, she's such a nag. But she works when memory and energy fails me as they often do.

Good luck Jay. Having so many fine friends everywhere is such a help. They really have no idea.
Anon
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martianmooncrab
User: martianmooncrab
Date: 2012-10-10 19:13 (UTC)
Subject: (no subject)
Be smart. Be smart. Be smart

conservation.. its not just for trees...
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frabjouslinz: Me Street
User: frabjouslinz
Date: 2012-10-10 21:34 (UTC)
Subject: (no subject)
Keyword:Me Street
Hugs. If I could give you a jolt of health and energy, I would. Of course, if I could do that, I would be magic, and, well, I'd be magic, wouldn't I?
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