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[photos|cancer] Cutting off the hair - Lakeshore
An author of no particular popularity

Jay Lake
Date: 2012-10-15 05:37
Subject: [photos|cancer] Cutting off the hair
Security: Public
Tags:cancer, child, friends, health, photos, radiantlisa
The Vectibix rash has been getting out of control. I've been unable to wash my face or hair due to extreme skin sensitivity. This has created terrible skin cruft as well as dandruff in my beard and hair. Plus my face and head ache and itch pretty much all the time.

Jersey Girl in Portland came over yesterday to hang out with me and Lisa Costello. She made a delightful brunch, and later they went off househunting. In between brunch and househunting, Jersey Girl gave me a crewcut. Lisa and [info]the_child took pictures, then I took a few self-portraits after.

We did a crewcut instead of a shave because my skin is so fragile and sensitive that the razor would have been a very bad idea. This is also why I have not shaven off my beard or moustache — I cannot tolerate the shave there, either.

I am having a lot of trouble with the whole rash issue. I'll write about that more soon. Suffice to say this has been a very difficult coping challenge. I am lucky that my friends see me for who I really am.

Or was, at least.

Default title upload by motoblur

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Default title upload by motoblur

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As usual, more at the Flickr sets here and here.

Photos © 2012, Joseph E. Lake, Jr., B. Lake and Lisa Costello.

Photos by Lisa Costello are all rights reserved, used with permission.

Creative Commons License

This work by Joseph E. Lake, Jr. and B. Lake is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 3.0 United States License.
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shelly_rae
User: shelly_rae
Date: 2012-10-15 15:09 (UTC)
Subject: (no subject)
Pobrecito. Persevere.
Anon
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mcjulie
User: mcjulie
Date: 2012-10-15 15:30 (UTC)
Subject: (no subject)
Jay, this is one of very few areas of what you're going through where I have any experience -- I had severe eczema for much of the summer/autumn of 2004. Uncontrolled itching/rashing/etc is unbelievably excruciating. If you've never experienced it, you cannot imagine the torture.

Extreme sympathy.
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Tom
User: voidampersand
Date: 2012-10-15 15:47 (UTC)
Subject: (no subject)
That looks like a mean rash alright.
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Chris McKitterick: can't take the sky from me
User: mckitterick
Date: 2012-10-15 17:10 (UTC)
Subject: (no subject)
Keyword:can't take the sky from me
Yikes, that looks like the opposite of fun. I hope this is only a short-lasting side-effect.
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Jay Lake
User: jaylake
Date: 2012-10-15 17:32 (UTC)
Subject: (no subject)
If you consider 10 months or so "short lasting", yes. :\
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Chris McKitterick: stone monkey
User: mckitterick
Date: 2012-10-15 17:55 (UTC)
Subject: Eeek!
Keyword:stone monkey
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Kari Sperring
User: la_marquise_de_
Date: 2012-10-15 17:35 (UTC)
Subject: (no subject)
The hair looks good, but you have my sympathy on the rash.
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martianmooncrab
User: martianmooncrab
Date: 2012-10-15 17:55 (UTC)
Subject: (no subject)
arrgh, just looking at the rash made me want to itch where mine was... now I am breaking out the tube of steroidal goodness..
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Keikaimalu
User: keikaimalu
Date: 2012-10-15 19:00 (UTC)
Subject: (no subject)
Man, that blows. I'm really sorry.

Would your skin tolerate oil? I find washing my face with olive oil is remarkably effective, and leaves it smooth and soothed. A friend of mine swears by washing her face with coconut oil. (Dab on, wipe off with washcloth.) Not sure how your current skin would tolerate it, though.

Also, Strong Skin Savvy. But I've mentioned that before.
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Jay Lake
User: jaylake
Date: 2012-10-15 19:23 (UTC)
Subject: (no subject)
Looking into the Skin Savvy. Olive oil? Really? How do you, um, get it back off? Isn't that real messy?
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Keikaimalu
User: keikaimalu
Date: 2012-10-15 19:45 (UTC)
Subject: (no subject)
I pour a little into the palm of one hand and spread it on my face with the fingertips of the other. Leave it alone for a few minutes, and then wipe it off with a warm, damp washcloth. Then you just rinse the washcloth. Not messy at all. You wouldn't think your skin would get cleaner, but it really does.

My friend uses cotton balls to gently wipe a little coconut oil onto her face, and I think she just leaves it on, sort of like a moisturizer. Even just the act of wiping it on with the cotton balls cleans other stuff off the skin.

It's fine if some of the oil stays on your skin. It just gets absorbed. I use it on my hands too.

FWIW, I use organic olive oil.
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Jay Lake
User: jaylake
Date: 2012-10-15 19:49 (UTC)
Subject: (no subject)
Thank you!
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Keikaimalu
User: keikaimalu
Date: 2012-10-15 21:41 (UTC)
Subject: (no subject)
Good luck!
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Evelyn
User: jaborwhalky
Date: 2012-10-17 04:54 (UTC)
Subject: (no subject)
I have no clue if it will help at all or if you can eat it.

But ask your Dr if its ok for you to eat Coconut oil or coconut butter. Like a few spoon fulls of it a day could help with the skin issues.
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