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[cancer] Field notes from cancerland redux - Lakeshore
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Jay Lake
Date: 2012-12-18 05:32
Subject: [cancer] Field notes from cancerland redux
Security: Public
Tags:cancer, health, personal, radiantlisa
The price of timing

Yesterday when Lisa Costello took me in for my Neulasta shot, the nurse quizzed me about when we had disconnected the pump on Sunday. Apparently if I get the shot less than 24 hours after the pump runs out, this compromises the therapeutic value. Insurance will not cover the payment, and I get billed $5,000. Wowzers. Especially since I'm not the one who schedules the shot.

GI restarts suck no matter when they come

This time, the GI restart happened the same day I came off the pump. Which is very weird. I am in a lot of discomfort, but no less than I'd be waiting two or three days for restart. I think the immediate issue is that I didn't get a day or two of rest. Not how I've ever thought of severe constipation before: as a rest day. As I said yesterday, some folks would complain if you hanged them with a new rope.

In which I am very ashamed of myself

Yesterday in the waiting area of the oncology clinic, there were several people who were medically compromised, socially intrusive and apparently unselfaware. As chemo deepens, this is what I turn into. (C.f. my recent comments about being "the other weirdo" in my therapist's waiting room. [ jlake.com | LiveJournal ]) Realizing I am on my way once again to becoming that person makes me angry and ashamed, which is an ego problem of mine, and a very unfair judgment on my fellow patients. I am not proud of myself for those resentful thoughts — I don't want to be like him — but they are real, and I am responsible for what I think and feel. Another erosion of my character in the face of cancer stress.

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jtdiii: Bio
User: jtdiii
Date: 2012-12-18 15:53 (UTC)
Subject: (no subject)
Keyword:Bio
Some diabetes drugs can cause a similar three day off, one day really on cycle...

Fun, fun, fun...
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Amy Sisson
User: amysisson
Date: 2012-12-18 18:28 (UTC)
Subject: (no subject)
Apparently if I get the shot less than 24 hours after the pump runs out, this compromises the therapeutic value. Insurance will not cover the payment, and I get billed $5,000. Wowzers. Especially since I'm not the one who schedules the shot.

Great.... So if you happened to be dealing with medical personnel who didn't know this -- a scenario that does not require any stretch of the imagination -- you get screwed both medically and financially.

I'm glad this nurse knew it.
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Lisa Costello
User: radiantlisa
Date: 2012-12-18 18:39 (UTC)
Subject: (no subject)
Luckily, the scheduler we talked to on Friday knew, too, which was good since everything ran later than normal. I'm just glad I had the sense to ask the scheduler in the first place ... sheer blind luck that I remembered.
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a_cubed
User: a_cubed
Date: 2012-12-19 08:19 (UTC)
Subject: (no subject)
Another example of the "best healthcare in the world (for people with coverage)" myth. Although I imagine you might be able to sue the person who gave you the shot for malpractice (more money for the lawyers, no guarantee of success, ridiculous outlay in time/money risk/energy for a patient undergoing cancer therapy...)
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Debbie N.
User: wild_irises
Date: 2012-12-21 22:41 (UTC)
Subject: (no subject)
I am responsible for what I think and feel.

I disagree. I don't think any of us have control over what we think or feel. I think we're responsible for what we do with our thoughts and feelings. By my lights, you're responsible to treat the folks in the waiting room without revealing your desire not to be like them. But you get to have that desire.
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