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[cancer] The feet are always the first to go - Lakeshore
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Jay Lake
Date: 2013-05-23 06:02
Subject: [cancer] The feet are always the first to go
Security: Public
Tags:cancer, events, friends, health, personal
Yesterday was my turn to cook here at Rio Hondo. I made momos, with a substantial assist from David Levine and Carrie Vaughn. In the kitchen cooking, which takes a while, my feet gave out. There's no other way to describe it. @dratz came to my rescue, took over the cooking and final meal prep on my behalf, while I lay on the couch. Even sitting at the table eating dinner with my feet on the floor was painful, so I retreated once more to the couch before going to bed early.

The best I can describe it is that the skin irritations produced by Vectibix sometimes express themselves as very tender, painful calluses on my feet. Being on my feet so much yesterday afternoon put so much pressure on those calluses that I could not be on my feet any more.

Next Monday, I start Regorafenib, a medication which is much harder on the feet (and hands) than Vectibix. This is only a taste of things to come.

Cancer erodes me, piece by piece, until there will be nothing left of me but laboring breath and the last guttering sparks of my will to live.

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shelly_rae
User: shelly_rae
Date: 2013-05-23 15:56 (UTC)
Subject: (no subject)
It slowed you down but didn't stop you from doing something many people never bother to do--make food and fun for friends and comrades. Persevere Jay. Carpe diem.
Yours in solidarity.
Anon
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martianmooncrab
User: martianmooncrab
Date: 2013-05-23 17:31 (UTC)
Subject: (no subject)
my feet gave out. There's no other way to describe it

unlike Frankenstein's creation, there are no other options at the moment.

*a very gentle air hug*
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anghara
User: anghara
Date: 2013-05-23 18:08 (UTC)
Subject: (no subject)
Sorry to hear of more woes, Jay.

Watching my father die of lung cancer right now has given me awhole new perspective on your situation. But while you are still (at least partly) ambulatory, he's not. His feet will probably give out through bedsores on his heels or something like that because he'll never really stand on them again...
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asakiyume: strawberries
User: asakiyume
Date: 2013-05-23 18:36 (UTC)
Subject: (no subject)
Keyword:strawberries
Since cancer appears to have won the tournament for your life, I guess it means you don't have to worry about heart disease, right? So you can eat pretty much what you like in terms of fatty or high-cholesterol foods? (Yes? No?)

If so, here is a fabulous recipe for a no-cook cake that I bet someone near to you could be persuaded to make for you. It's got sweetened condensed milk that is boiled into caramel, Nestle's cream (or you can substitute heavy cream), sugar, Maria biscuits, egg yolks, BUTTER, sugar.... yeah, just one mouthful and you can feel your arteries groaning, but it's VERY delicious.

---All the foods that people abstain from for their health, you should totally indulge in (y'know, so long as they don't wreck your digestion)
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Jay Lake
User: jaylake
Date: 2013-05-23 18:46 (UTC)
Subject: (no subject)
I've been trying to enjoy my food a lot lately. That party's over soon with the new meds. So, yes, I'll pass this on. ;)
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asakiyume: Aquaman is sad
User: asakiyume
Date: 2013-05-23 18:55 (UTC)
Subject: (no subject)
Keyword:Aquaman is sad
Damn!

What are you able to eat on the new meds? (That you like)
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Jay Lake
User: jaylake
Date: 2013-05-23 18:59 (UTC)
Subject: (no subject)
We won't know until I'm on them. Then we'll see how much my taste buds are blunted, and what food intolerances emerge. Every regimen is different for every patient.
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asakiyume: strawberries
User: asakiyume
Date: 2013-05-23 19:02 (UTC)
Subject: (no subject)
Keyword:strawberries
I'll be reading, and I'll pay attention to what you report.

On Monday this starts? Are you at all tempted to go on an eating binge between now and Monday?
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Bob
User: yourbob
Date: 2013-05-24 14:45 (UTC)
Subject: (no subject)
Is there a Hawaiian themed scooter in your future? You could literally let your freak flag fly - in addition to the little red one for safety.
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