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Lakeshore - [cancer] Sometimes the news isn't all about Armageddon
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Jay Lake
Date: 2013-07-25 06:35
Subject: [cancer] Sometimes the news isn't all about Armageddon
Security: Public
Tags:cancer, conventions, events, family, health, personal, radiantlisa
Lisa Costello, Dad and I met with my oncologist yesterday. They had both the CT and PET scan reports with them, which had not been pre-released to us.

Not to bury the lede, the news was about as good as news gets for me these days.

Basically, the tumors in my lungs have continued to grow, but modestly. The largest is about 10 mm. No new ones have emerged that were detectable by scan. As my oncologist says, this is not the most dangerous part of things. While unfortunate, we can live with this for now.

The abdominal tumors, in my liver and in omentum, have shrunk. Again, no new ones have emerged that were detectable by scan. This is a significantly good step, as it indicates the Regorafenib treatment has been effective. Shrinkage is in fact unexpected, as we were hoping for static size or minimal growth.

We discussed the recent highly elevated CEA levels which had so alarmed everyone. My oncologist is not sure what they mean, and neither are their colleagues. Possibly cancer cells under attack are releasing CEA as part of their stress. In effect, this is the first time CEA has given me a false positive. Which is a good thing.

The doctor characterized me as being an outlier, or even outlier to the outliers. My survival time is reaching unusual lengths. They felt like I could look forward to another nine to eighteen months of life, given the drug performance. That is sufficient time to possibly survive long enough to see next-generation treatments become available.

As of yesterday, I am resuming Regorafenib. Our followup is blood work and an oncology consultation in a month, with CT scan and another oncology consultation in two months. This also means that barring unusual circumstances, I will be at Worldcon.

So good news, or at a minimum, least-bad news.

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Kari Sperring
User: la_marquise_de_
Date: 2013-07-25 13:43 (UTC)
Subject: (no subject)
That is good to hear. Much love.
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Beth
User: casacorona
Date: 2013-07-25 13:48 (UTC)
Subject: (no subject)
That is excellent news, and I'm very glad you'll be at Worldcon.

Sometimes, unexpected good news can be more stressful than expected bad news. You've gamed out every possibility except the good one. Take a breath. Enjoy the hell out of New Zealand.
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it's a great life, if you don't weaken
User: matociquala
Date: 2013-07-25 14:39 (UTC)
Subject: (no subject)
+1
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Angie: New Me
User: aiela
Date: 2013-07-25 13:50 (UTC)
Subject: (no subject)
Keyword:New Me
This is excellent news. The science is moving so fast, my fingers and toes are crossed that something new comes along that can help you when you need it most.
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madrobins
User: madrobins
Date: 2013-07-25 13:52 (UTC)
Subject: (no subject)
You're unusual in so many ways--I suppose (and am so happy) that it's not unreasonable for you to be an outlier here, too.

Cautiously celebratory. I'm so glad.
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Matthew S. Rotundo: Me with bird
User: matthewsrotundo
Date: 2013-07-25 14:01 (UTC)
Subject: (no subject)
Keyword:Me with bird
The bird and I are pleased.

See you at WorldCon.
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Keikaimalu
User: keikaimalu
Date: 2013-07-25 14:27 (UTC)
Subject: (no subject)
Very glad for you, Outlier Jay. :)
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it's a great life, if you don't weaken
User: matociquala
Date: 2013-07-25 14:38 (UTC)
Subject: (no subject)
Oh, good news indeed. YAY!
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Queen of the Skies
User: queenoftheskies
Date: 2013-07-25 15:26 (UTC)
Subject: (no subject)
So glad you got positive news this time.
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stillnotbored
User: stillnotbored
Date: 2013-07-25 15:37 (UTC)
Subject: (no subject)
Tiny, unexpected surprises are good. :) Maybe the universe has more good things up its sleeve.

You enjoy each extra day. The rest of us will do the hoping for you.
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Dave O'Neill
User: daveon
Date: 2013-07-25 15:39 (UTC)
Subject: (no subject)
That is good new indeed.
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alyx
User: planetalyx
Date: 2013-07-25 16:00 (UTC)
Subject: (no subject)
Wow--least bad news! I understand not wanting to hope too much, but I am glad all the same.
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Samantha Henderson
User: samhenderson
Date: 2013-07-25 16:26 (UTC)
Subject: (no subject)
Great news!
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joycemocha
User: joycemocha
Date: 2013-07-25 16:35 (UTC)
Subject: (no subject)
YAY.
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ericjamesstone
User: ericjamesstone
Date: 2013-07-25 18:47 (UTC)
Subject: (no subject)
Here's hoping the Regorafenib continues working.
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martianmooncrab
User: martianmooncrab
Date: 2013-07-25 18:55 (UTC)
Subject: (no subject)
its nice when an awful side effects drug actually performs its job, keeping the ole claws clacked for you.
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mmegaera
User: mmegaera
Date: 2013-07-25 19:38 (UTC)
Subject: (no subject)
So, so pleased for you.
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fledgist
User: fledgist
Date: 2013-07-25 21:16 (UTC)
Subject: (no subject)
What is not bad is good.
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Submarine Bells: backlit
User: submarine_bells
Date: 2013-07-25 23:13 (UTC)
Subject: (no subject)
Keyword:backlit
I am so glad to hear this. Even a small pause in Unremitting Yuk can give one a chance to catch one's breath... and this is real, actual Good News. Hooray!
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adelheid_p
User: adelheid_p
Date: 2013-07-25 23:39 (UTC)
Subject: (no subject)
This is awesome news! I will be there, too.
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Bob
User: yourbob
Date: 2013-07-26 01:23 (UTC)
Subject: (no subject)
Digits continue crossed.
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The Warrior Queen of Awesomeland
User: porcelain72
Date: 2013-07-26 04:20 (UTC)
Subject: (no subject)
Very glad to read this.
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alumiere
User: alumiere
Date: 2013-07-26 07:56 (UTC)
Subject: (no subject)
Congrats on being an outlier and having that be a fairly good thing right now. I hope it continues to be less bad than expected and that the side effects decrease.
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Jim C. Hines
User: jimhines
Date: 2013-07-26 17:55 (UTC)
Subject: (no subject)
Very glad to hear it!
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Natalie S Ford
User: natalief
Date: 2013-07-27 11:16 (UTC)
Subject: (no subject)
*hugs*

I am here and reading although often days after you write.

I had been concerned that you were still taking a drug that had caused elevated CEA levels but now I am glad that you are! ;-p

Fuck cancer, enjoy life and your loved ones.
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Agent Mimi
User: agent_mimi
Date: 2013-08-06 13:07 (UTC)
Subject: (no subject)
So glad to hear this!
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