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[cancer] Field notes from Cancerland, eclectic edition - Lakeshore
An author of no particular popularity

Jay Lake
Date: 2013-10-01 07:10
Subject: [cancer] Field notes from Cancerland, eclectic edition
Security: Public
Tags:books, cancer, child, death, family, food, health, personal, publishing, radiantlisa, travel, uk, writing
Side Effects

I continue tracking side effects. I now monitor blood pressure daily, as my friend Regorafenib drives that up. I have a nifty iPhone app that records BP, pulse and weight. I'm looking for a poop tracker as well, just haven't yet sat down and focused on this. We've got the overnight sleep issues under control with the combination of Trazodone and Lorazepam, though daytime fatigue and napping needs continued. We're dealing with unexplained gradual weight loss. (Well, actually its unexplained gradual reduction of food intake, so the weight loss per se is perfectly explicable.) The feet as always trouble me, and my GI has gone back into horrible overdrive.

Financial and Legal Planning

This is going pretty well. We've got budgets going forward for me both pre- and post-mortem, and the long-term estate plan in place to provide for [info]the_child and her mother after I pass. My ongoing survival makes planning a little more complex, but there you go. I could have worse problems. I've also been consulting with counsel about the intersection between intellectual property income and disability income. We seem to have a plan there as well, but are awaiting some confirmation of the legal opinions rendered thus far. Soon most of this will be off my plate except for some ongoing management and reporting requirements.

Writing and Publishing

I continue to not write. I expect this state of affairs to last the rest of my life, as whenever the current medication fails and I go off it, that will not signal a return to health and full cognitive capacity, but rather an entry to my period of terminal decline. We might yet get lucky with a study drug, but I would be beyond amazed if any other core cancer fighting drug left my brain any more clear than the last five treatment rounds have.

Publishing, on the other hand, is going swimmingly. Several fun and interesting things are happening, and wait to be announced. Some big, some small, some just right. Watch this space for details. Let's just say I'm happy with the progress.

Travel

Thanks to the generosity of Unnamed Benefactors, both Lisa Costello and I will be at World Fantasy Convention in Brighton next month. I am flying over a week early, and hope to spend a day or two in Paris, otherwise be in London. If you're a European friend or fan who'd like to see me, watch for announcements about exactly when and where I can be found. Plus at the convention, of course, with Lisa.

Food

In news about which I am inordinately pleased, I will be a french fry tester today for a small regional restaurant chain. I'm not sure how much I'm allowed to say about this, so I may or may not report more after the fact. But for some reason, this seriously tickles my fancy.

Mmmm. French fries.

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martianmooncrab
User: martianmooncrab
Date: 2013-10-01 18:01 (UTC)
Subject: (no subject)
with unexplained gradual weight loss. (

Why is it the fatal things cause weight loss? Otherwise an entire industry could be based on it? sigh.

Being a french fry tester, Ohhh, is it Burgerville?
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Gary Emenitove
User: garyomaha
Date: 2013-10-02 13:34 (UTC)
Subject: (no subject)
>>I'm looking for a poop tracker as well, just haven't yet sat down and focused on this.<<

::snerk::
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