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Jay Lake
Date: 2009-07-02 16:08
Subject: [cancer] And so it goes
Security: Public
Tags:cancer, conventions, family, health, travel
More news today from my oncologist. Unless something crops up to contraindicate, we're committing to chemo. This is based on the MRI results, and her further discussions with my cancer surgeon about my case.

I have some followups in San Francisco the week of 7/20, including further imaging studies of the various sites, and a full chest imaging to evaluate the lung spot and see if there are more lung spots.

I meet with my Portland oncologist on 7/27 to formally prescribe the chemotherapy. On 7/29 I have the chemotherapy orientation class. Sometime thereafter (as yet unscheduled) I will have the port put in — I'll be a Harkonnen! — then commence a six month course, with a break at midpoint for evaluation through further imaging studies.

So sometime in early August I'll be entering the magical land of chemo. This makes WorldCon very iffy, though we'll look at scheduling issues. I'm not going to delay treatment just for the sake of a Con trip, but if it all fits together, that can be my hurrah. I am probably good for all commitments before then. On the plus side, I can probably get the first draft of Endurance wrapped before the killjuice starts melting my brain.

In other news, my mom is in the ER in Portland tonight with a blood clotting issue which is not particularly serious now but needs to be addressed before it becomes serious. I, of course, am in San Francisco, and my sister is at the Washington coast.

Never rains but it pours around here.

Originally published at jlake.com.

Post A Comment | 24 Comments | | Link

User: martianmooncrab
Date: 2009-07-03 00:12 (UTC)
Subject: (no subject)
good luck with the chemo, one thing about cancer it sure expands your vocabulary and medical knowledge.
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User: karenjunker
Date: 2009-07-03 00:26 (UTC)
Subject: (no subject)
Sending you a big hug ::HUG:: and hoping you fare well with the chemo.
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miki garrison: kiss
User: mikigarrison
Date: 2009-07-03 00:36 (UTC)
Subject: (no subject)
I've told you all my entertaining hair loss stories, so I won't go there again -- but don't be surprised if you get a merkin for a present someday. :p

Seriously, though, I am glad that you have all these excellent people -- both medical folks and loved ones -- on your side for all of this. Definitely let me know if there's anything I can do. You and your family are definitely in my thoughts and prayers through all of this.

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Rose Fox
User: rosefox
Date: 2009-07-03 02:12 (UTC)
Subject: (no subject)
You know, Jay, if you cut all your hair off now, you could probably have a very stylish wig made from it!

Granted, it would about cover one elbow...
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User: debbiemumford
Date: 2009-07-03 00:37 (UTC)
Subject: (no subject)
Thinking good thoughts for you and your mom. {{{Hugs}}}
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User: e_bourne
Date: 2009-07-03 00:40 (UTC)
Subject: (no subject)
Both my mother and sister had chemo. I come from a highly cancerous family. It's scary for sure. How tiring depends on the type of chemo and how they decide to spread it out. My mother, in her seventies, after the first month, was able to get it adjusted so she could continue her classes. My sister had once a month treatment, which knocked her out for a couple of days, and was then a little tired, but able to have a normal life. Wrestle with your doctors (which it sounds like you're good at) for what is going to be best for both your cancer and you. It need not melt your brain. Jo Clayton wrote her last book in the hospital on more drugs than I can count while she was being radiated and receiving chemo for multiple myeloma. You are in far better shape and can fight this and come out the other side victorious, like Green. Your powers are strong.
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User: mevennen
Date: 2009-07-03 08:42 (UTC)
Subject: (no subject)
Totally agree with this. T didn't find chemo particularly debilitating. I met someone who had taken her chemo pills on holiday with her, and a friend with arthritis is permanently on chemotherapy drugs (it's only the level of the dose that makes them chemotherapy for cancer patients, and just 'drugs' in her case). There seem to be thousands of variations and it's advancing all the time. I know when T had it, it violated (in a good way) all my expectations about what it would entail.
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User: ygolonac
Date: 2009-07-03 00:41 (UTC)
Subject: (no subject)
Are you getting a PICC line put in?

I had one for my pre-surgery chemo. It's annoying having that thing hanging around all the time.

I was always worried when I was in a crowd of people that somebody would hook it somehow and pull it out of my arm :(

I've found that I seem to be more sensitive to cold since my cancer adventure.

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Kate Schaefer
User: kate_schaefer
Date: 2009-07-03 01:43 (UTC)
Subject: (no subject)
Best of luck to your mom, and mondo good luck to you. My sister had her last chemo treatment last week, and says that she's beginning to feel like a human being again. I asked her which human being, and she merely snorted at me.
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The NewroticGirl: love/hate relationship
User: newroticgirl
Date: 2009-07-03 01:44 (UTC)
Subject: (no subject)
Keyword:love/hate relationship
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Jenn Reese: daisy
User: jennreese
Date: 2009-07-03 02:07 (UTC)
Subject: (no subject)
Hugs all around, Jay. Still sending you all the chi I can.
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Greg van Eekhout: doodle
User: gregvaneekhout
Date: 2009-07-03 02:30 (UTC)
Subject: (no subject)
The next time I see you at a con, expect extra loving.
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User: manmela
Date: 2009-07-03 05:20 (UTC)
Subject: (no subject)
May your life find an umbrella, preferably one that is steam-driven, to shield you from the rain,
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Lisa Deutsch Harrigan
User: lisa_marli
Date: 2009-07-03 06:01 (UTC)
Subject: (no subject)
*hugs* Will send you Reiki.
Just be sure they set you lines neatly enough you can hide them under your Hawaiian shirts. Then go for it.
And don't forget those killer ray guns. Cancers hate them. :)
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Rhonda Parrish
User: rhondaparrish
Date: 2009-07-03 07:08 (UTC)
Subject: (no subject)
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Kari Sperring
User: la_marquise_de_
Date: 2009-07-03 10:24 (UTC)
Subject: (no subject)
Very best wishes to both you and your mom.
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User: kara_gnome
Date: 2009-07-03 14:11 (UTC)
Subject: (no subject)
It's so hard when it's our moms, but I'm sure she'll be fine; hang in there, she knows you're thinking about her and would be there if you could.

My dad did everything fine, even during the chemo, though I think he did slow down a bit. Other than that, hardly any brainmelt at all *g*
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User: csinman
Date: 2009-07-03 15:16 (UTC)
Subject: (no subject)
I found some health on E-bay and ordered it. Your mom's should arrive sooner than yours, but they're both coming in the mail.

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User: yourbob
Date: 2009-07-03 16:06 (UTC)
Subject: (no subject)
Continued thinking of you.
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Michael Curry: alton
User: mcurry
Date: 2009-07-03 19:05 (UTC)
Subject: (no subject)
The treatment's the important thing, but it'd be great if your particular course of chemo let you make it to Worldcon anyway.
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Twilight: Drama
User: twilight2000
Date: 2009-07-07 00:22 (UTC)
Subject: (no subject)
Bright Blessings on you and your family - let's hope the desert deluge passes and you're back to lovely sunny days again soon.

In the mean time - think out loud - we'll think good thoughts for you and yours.


Even when we don't know what to say (and that will happen a lot, I suspect), we're thinking of you.
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User: wyvernfriend
Date: 2009-07-07 21:03 (UTC)
Subject: (no subject)
Good luck with the chemo from a 6 year survivor of chemo. I had hodgkins lymphoma, I also recommend the books "cancer is a word not a sentence" and "What can I do to help" for friends and family as well as "44.5 things to do if you have cancer".

Feel free to email me or contact me through LJ when you're going through it.
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