January 22nd, 2013


[links] Link salad heads for the hospital and goes offline

The Acts of Whimsy cancer fundraiser and the Lakeside Kickstarter for the documentary about me, [info]the_child, and cancer are still live. Both have made goal, but additional support is always welcome. Please check them out if you have not done so yet. Note that the next unlock goal at $44,000 is [info]the_child's video, "How to Write Like My Dad". We're almost there!

“A small, desperate act of hope.” — Waterloo Productions on me and JayCon XIII.

The Steampunk Megapack includes my Dark Town short story, "Midnight at Valdosta's"

What Is a ‘Hacktivist’? — On lexical warfare. (Via David Goldman.)

Polynesians reached South America, picked up sweet potatoes, went homeTubers were spread from New Zealand to Hawaii before European contact.

It’s Always Chile in Norway: the Five Types of Territorial Morphology

Mars could have held watery underground oases for life — Much like myself.

Acoustic LevitationUsing sound waves to levitate individual droplets of solutions containing pharmaceutical drugs and drying them in mid-air. (Snurched from Daily Idioms, Annotated.)

Son's ordeal was our fault, say parentsFather says decision to refuse tetanus shot made without facts. Amazingly enough, an anti-vax denialist who learned from experience. At a terrible cost. Rara avis indeed, when a denialist lets data trump ideology. (Snurched from Scrivener's Error.)

Suds for DrugsTide detergent: Works on tough stains. Can now also be traded for crack. A case study in American ingenuity, legal and otherwise. Wow. Weird shit, Maynard. (Thanks to [info]danjite.)

Bill Clinton to Democrats: Don’t trivialize gun cultureFormer President Bill Clinton warned a group of top Democratic donors at a private Saturday meeting not to underestimate the passions that gun control stirs among many Americans. “Do not patronize the passionate supporters of your opponents by looking down your nose at them,” Clinton said. They may be passionate, but gun culture proponents are also wrong. Deadly, morally wrong. (Thanks to [info]danjite.)

Piercing the Myths about Women and Guns — Gosh. Conservative intellectual dishonesty on a controversial topic. Who could imagine such a thing? After all, character counts.

The Speech -- A Primer — Charlie Pierce on President Obama's inaugural address. But, for an afternoon, anyway, a Democratic president reclaimed the language of freedom from those for whom it means merely lower taxes and more guns. He reclaimed government as a manifestation of a country's aspirations, and not as an anchor on its progress. And he refuted, with precision and neatly camouflaged contempt, many of the most destructive ideas that have poisoned out politics for nearly four decades now. Ta-Nehisi Coates with more.

QotD?: Will you remember me when I am gone?

Writing time yesterday: 1.25 hours of WRPA (further revisions "Monsters in the Mountains at the Edge of the World", plus submittal)
Hours slept: 5.75 hours (solid)
Body movement: 0.0 hours (pre-op prep)
Weight: n/a (scale still out of batteries)
Number of FEMA troops on my block enforcing disability rights: 0
Currently reading: The Hydrogen Sonata by Iain M. Banks


[cancer] Surgery today

There's a place I go right before surgery, in a mental and emotional sense. I become very hard and internal. Not mean or snappish or unloving. Just... focused. I've been there since yesterday. Drawing into my body, as it were, and concentrating on what is to come.

Nonetheless, [info]the_child and I managed to have a couple of productive conversations last night about my illness, my prognosis and my mortality. She also spent some time with Lisa Costello and with Mother of the Child. Processing, we're all processing constantly.

Meanwhile, it is today, and I'm off to the hospital shortly. 6 am check-in time for morning surgery. I probably won't even go into prep before 7 am, then likely be in the operating room five to seven hours. Recovery sometime this afternoon, then ICU for at least 24 hours.

A few details about the surgery for new or recent readers:
  • This is my fifth major surgery since 2008, all in pursuit of cancer. That includes a colon resection, a lung resection, and two liver resections prior to this, my third liver resection.

  • As a side note, I've also had three day surgeries and two very minor outpatient surgeries in connection with this process. All of those were about placing chemo access ports in my chest and removing them again.

  • Today's surgery has four primary goals:

    First is to resect or radiofrequency ablate all three of my known, existing tumors. This will return me to No Evidence of Disease (NED) status. NED is not a cure, or even a remission, it just means I have no detectable tumors.

    Second is to inspect the site of my fourth, suspected tumor which emerged during last fall's chemo course. The determination of what that site actually represents may cause a change in my spring chemo course.

    Third is to inspect the rest of my liver for any areas of damage or emergent metastatic disease that may not have been in evidence on the scans.

    Fourth is to secure sufficient tissue samples for whole genome sequencing of my tumor.

It will be a few days before I am meaningfully lucid. I'll be in the hospital likely through Saturday at least, then recovering at home for a while. Lisa Costello has the keys to both the LiveJournal and WordPress instances of my blog, and she will be posting updates as her time and mental energy permit. I shouldn't expect any resumption of blogging on my part until the weekend at the earliest, and possibly not until next week.

People often ask what they can do to help me. Good thoughts and prayers (depending on your orientation) are always welcome. Here's several other possibilities:

Regular wit and erudition shall return.


Update on Jay

This is Lisa, giving you all a quick update on Jay. He’s out of surgery and doing well. He’s currently in recovery.

There were, however, more tumors than expected. They’ve all been dealt with, either by excision or radio frequency ablation.

I’ll post more later when I know more details.