July 26th, 2013


[links] Link salad for a wake weekend

There's little relief, give us reprieve — More from Lisa Costello on current cancer developments.

Jay Lake Pre-Mortem Read-a-thon, Review the Fifth: Trial of Flowers — Cool review.

Booted Off the Plane: How Normal Is That? — Air travel is an unusual social and legal space where many of the rights and norms of society do not apply.

The “Human Fly” atop a DC-8 at the Mojave 1000 (1970) — Whoa!

Let There Be Night — Escaping light pollution. (Via Daily Idioms, Annotated.)

NASA: Space centaurs are likely comets — My favorite headline today.

Gibraltar might be the beginning of the end for the Atlantic OceanThe small tectonic subduction zone there may grow and spread.

How Height Is Connected to Cancer

Fake memory implanted in mice with a beam of lightMice taught to fear a location after they were no longer in it.

Wearing Privilege — Does a hoodie make you a threat?

Anthony Weiner and Liberal MoralityThe New York mayoral candidate's two big failures: terrible political sense and a lack of compassion. Ta-Nehisi Coates is interesting.

Obama: Rest of my presidency is for working-class America — Given what a total corporatist and centrist he's been thus far, essentially a Rockefeller Republican, I will be surprised if this is more than empty words.

QotD?: Got morbid?

Writing time yesterday: 0.0 hours (chemo brain)
Hours slept: 7.25 hours (solid)
Body movement: 0.5 hours (stationary bike)
Weight: 248.6
Number of FEMA troops on my block conducting Department of Justice investigations of white patriots: 0
Currently reading: Real Happiness: The Power of Meditation: A 28-Day Program by Sharon Salzberg


[photos] Your Friday moment of zen

Your Friday moment of zen.


Dad (the US ambassador) and I at Naadam (sort of the Superbowl, Mardi Gras and Fourth of July rolled into one national event), Outer Mongolia. Note the traditional horsetail banners on the blue stage. Photo © 1992, 2013, Joseph E. Lake, Jr.

Creative Commons License

This work by Joseph E. Lake, Jr. is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 3.0 United States License.


[cancer] Stage I trials, the process begins

Despite this week's reprieve, Stage I trials are still much on my mind. The Regorafenib will fail, sometime in the next six to nine months, and we'll be back to where we thought we were earlier this week.

Yesterday, Dad, Lisa Costello, [info]mikigarrison and I had a long meeting on the subject. Today the four of us are going to see the Stage I trials coordinator at my home hospital. Tomorrow we are meeting with Janet Freeman-Daily to review the outcomes.

So, yeah. Not a problem for this month or a next. But definitely a problem for later this year or sometime next year.

And wow is this a complicated subject.

When I have more time than I do right now, I'll try to spell out some of what we've learned and some of what we're thinking. Suffice to say that for now, we've laid out a preliminary roadmap for me. We'll be filling in the blanks as we go along.

I could not possibly do this without the incredible support from Lisa, Dad, Miki, Janet and many other folks. It's like shooting Class IV rapids on a surfboard.

Thank you all. I love you all.


[cancer|repost] JayWake, in which I host my own funeral tomorrow


Small Clockwork Departure You are invited to my pre-mortem wake and roast, a somewhat morbid, deeply irreverent, but joyous celebration of me. This is a time for celebrating my life, loves, and dark, twisted sense of humor. Bring your stories (hysterical, at my expense), your tasteless jokes, and any and all expressions gleefully macabre. Come party with the man who has never passed up the chance to poke cancer in the eye and laugh about it.

Saturday, July 27, 6:PM - ?

Holiday Inn Portland Airport
8439 NE Columbia Blvd
Portland, OR 97220

We are deeply grateful to the Cascade Writers’ Conference who is gifting us with the cancellation of their Saturday evening programming so that their members can attend JayWake. In addition, they have offered the unused space for our celebration. We are humbled by their generosity.

We are also deeply grateful to Tom Doherty and Tor Books for their very generous support of JayWake,

We are arranging for a group rate for out-of-town guests at the Holiday Inn. Please email tammyjoy6@gmail.com for information on the hotel.

Food and Libations:
There will be a buffet dinner for guests who RSVP. RSVP-ing tells us how many people to prepare for. Please email jaywakereg@gmail.com or reply to the Facebook event to RSVP. Donations will be accepted (but not required) to offset the cost of the meal.

The Roast will begin at about 7:30. Be warned: the jokes and stories contained herein will not only push the boundaries of good taste, they will leapfrog over the boundaries blowing a raspberry. This is not a time to say how I touched your life. This is a time to say how I touched you inappropriately. Please contact jaywake.questions@gmail.com for information on being a scheduled speaker.

Sandra Tayler and the JayWake Book
The mighty @sandratayler is working on the Jay Wake Book. She's looking for pictures, stories and other material about me. As Sandra says:
Our friend Jay has been diagnosed with terminal cancer and is hosting his own wake, Jay Wake, which Howard and I are attending. We know that other friends of Jay would love to be able to come, but can’t for a multitude of reasons. The Jay Wake Book is a project to let everyone participate in the celebration of Jay. I’ll be collecting stories, art, and photos of Jay to compile into the book. The first iteration of this book will be presented to Jay at Jay Wake. The second iteration will include stories and photos collected at Jay Wake. It will be made generally available either in electronic or print version.

Please contribute if you can.

We will be accepting donations to offset the cost of the meal and event. Use the PayPal button below, or contact jaywake.questions@gmail.com if you'd like to donate in another way.

T-shirts with a black and white line art version of the art below, by Howard Tayler, will be available. Contact jaywake.questions@gmail.com if you'd like to order one.

Planning to Attend?
If you are planning to attend, please RSVP to jaywakereg@gmail.com or at the Facebook event.

Clockwork Departure
Art © 2013 Howard Tayler. Reproduced with permission.

Questions? Email jaywake.questions@gmail.com.

This post is adapted from the JayWake page here.