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[cancer] A note on spoons - Lakeshore — LiveJournal
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Jay Lake
Date: 2010-01-09 11:53
Subject: [cancer] A note on spoons
Security: Public
Tags:cancer, health, personal
Several folks have asked about the spoons metaphor.

This comes from "spoon theory", promoted by the lupus and MS and other communities of people with "hidden disabilities". Basically, the idea is when you're sick that way (or in my case, in post-op recovery followed by chemo), you can still do anything you want. You just can't do everything you want. People in full health start their day with a very large supply of spoons, the spoons representing increments of energy or attention or focus, and spend them as they go through their days. People in limited health have fewer spoons. Simple things like taking a shower can take a lot out of a person, for example. So you wind up asking yourself questions like, "do I have enough energy to take a shower and to do a load of laundry?" Because you have enough spoons to do either but not both.

Chemotherapy definitely places me in spoon deficit. I don't look like I have cancer. My face isn't drawn, I don't move in pain, I am my usual ruddy color. It's easy to look at me and wonder why I'm walking so slowly, for example. But the spoons are still missing.

So my friends and loved ones have conspired to shower me with spoons.



That way I have extras, to move me through the hard times ahead.

Several folks have also asked how to send me spoons themselves. (Or cards, or knitted hats, or unmarked $100 bills, or whatever.) I guard my daily privacy in terms of my home address and so on, but I'm happy to receive packages and mail at my PO Box. So, herewith:
Jay Lake
PO Box 42611
Portland, OR 97242-0611
United States

And once again, thank you all. Later I'll see if I can pull together a more complete assessment of the spoon gifting, and proper gratitude by name.

Post A Comment | 9 Comments | | Link

User: martianmooncrab
Date: 2010-01-09 20:10 (UTC)
Subject: (no subject)
comes from "spoon theory", promoted

you need a couple of sporks there...
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User: shelly_rae
Date: 2010-01-10 00:56 (UTC)
Subject: (no subject)
Oh there is one very fine Titanium "Battle Spork" provided by the lovely and talented jennifer_brozek.
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User: fledgist
Date: 2010-01-10 02:17 (UTC)
Subject: (no subject)
Wot, no ladles?
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it's a great life, if you don't weaken
User: matociquala
Date: 2010-01-10 03:52 (UTC)
Subject: (no subject)
A very silly dog to cheer you up:

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Jay Lake
User: jaylake
Date: 2010-01-10 03:56 (UTC)
Subject: (no subject)
Hilarious! Love your GRD.

:: hugs ::
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it's a great life, if you don't weaken
User: matociquala
Date: 2010-01-10 03:58 (UTC)
Subject: (no subject)
*g* It made me laugh so hard I had to share.

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Síocháin Columan: Health
User: bhanfhlaith
Date: 2010-01-10 20:25 (UTC)
Subject: (no subject)
Thank you for posting this. I shared it with a friend who is undergoing chemo for breast cancer and she is very young and needs support. This was a helpful post.
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Jay Lake
User: jaylake
Date: 2010-01-10 20:43 (UTC)
Subject: (no subject)
You are most welcome. I don't know if it will help her to skim through my cancer blogging, but it starts in April of 2008, and all cancer posts have the tag /cancer



Is the very first one, from before my initial diagnosis. I've been pretty blunt about it all, the good and the bad. Or she can write to me if she likes, either through comments or directly.
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User: pingback_bot
Date: 2012-02-10 03:01 (UTC)
Subject: No title
User curiouseve referenced to your post from No title saying: [...] http://jaylake.livejournal.com/2021240.html [...]
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January 2014
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