?

Log in

No account? Create an account
[personal|cancer] Another mixed update - Lakeshore — LiveJournal
An author of no particular popularity

Jay Lake
Date: 2010-01-16 06:19
Subject: [personal|cancer] Another mixed update
Security: Public
Tags:calendula, cancer, child, health, personal, politics, portland, religion, seattle, shellyrae, travel
Last night was pretty bad. Lower GI distress got significantly (and very unpleasantly) out of control. I have the right meds for that, but they cause other problems, so I'm perhaps too slow to take them when needed. Which I did, eventually. I feel mostly okay this morning, so I'm proceeding with the weekend plans.

scarlettina and I are packing up soon to have breakfast with my parents, then drive to Seattle. A small party this afternoon. Tomorrow I'll go visit shelly_rae, and stay with her a couple of days, taking the train home Tuesday. Dinner with a friend Tuesday night, calendula_witch arrives Wednesday, then chemo infusion number two next Friday, six days from now.

I am still tired a lot, and sleepy, but I'm slowly chivvying my sleep hours down toward normal. I'm not getting nearly the mileage out of my waking hours I would in ordinary health, but still I walked an hour yesterday, and wrote almost two hours! Wore myself out doing it, though.

On this morning's walk I was briefly, and politely, questioned by a police officer. I'd forgotten my reflective vest, which I'm pretty sure is universal code for "not a thug", because no self-respecting meth head or housebreaker would be wearing one, so I was walking in a black hoodie and black shorts. On the flip side, I was wearing the varicolored hat deborahjross knitted me, and the red scarf the_child knitted me. Not your usual crimewear.

More to the point, I am white and well-spoken. Being (relatively) tall and pale-haired/pale-eyed doesn't hurt either. But I'm not the least bit ignorant of the fact that as soon as the officer saw my face and heard my voice he relaxed. That's white privilege on the hoof, bluntly. Not having to show my ID or justify myself in detail for wandering around empty streets at 4 am in dark clothes.

For whatever it's worth, I was friendly and polite to the officer, and wished him a nice, safe morning. And as a resident of this neighborhood, I'd just as soon he did examine suspicious characters. I don't think I'm suspicious, but anyone wandering around in the rain at 4 am is a bit odd, frankly. I plan to call the police non-emergency number and thank them for the safety check, because I figure all they ever hear is bitching, so it might be nice to have a pleasant call for a change.

I mostly have part 2 of the pink unicorn post sorted in my head. It makes me realize there may be a part 3. I want to get that right, so not rushing that out this morning. And of course, every time I think about this topic, I have forty other things I want to say. Why didn't I become a talk show host or something?

Off to get ready for my weekend. You all play nice.

Post A Comment | 11 Comments | | Link






Gary Emenitove
User: garyomaha
Date: 2010-01-16 14:44 (UTC)
Subject: (no subject)
>>Why didn't I become a talk show host or something?<<

You still could. Not that you have the time, but you certainly have the aptitude. Isn't there that free-form public radio station in Portland?


Reply | Thread | Link



Kari Sperring
User: la_marquise_de_
Date: 2010-01-16 16:05 (UTC)
Subject: (no subject)
Have a lovely weekend, and I hope that tonight is far better to you than last night.
And I'll play nice, I promise.
Reply | Thread | Link



(no subject) - (Anonymous)
scarlettina: LOL!
User: scarlettina
Date: 2010-01-17 04:08 (UTC)
Subject: (no subject)
Keyword:LOL!
Doesn't it? really, he ought to be arrested for wearing it in public. :-)
Reply | Parent | Thread | Link



shelly_rae: Big leaf Maple
User: shelly_rae
Date: 2010-01-16 16:49 (UTC)
Subject: (no subject)
Keyword:Big leaf Maple
And hence Kyle Cassidy's winning picture caption is proven true. No one will believe you are a villian in that hat. He was checking to see if you, ahem, had wandered off without meds....
Anon


Edited at 2010-01-16 04:49 pm (UTC)
Reply | Thread | Link



User: deborahjross
Date: 2010-01-16 17:19 (UTC)
Subject: (no subject)
Keyword:teddy bears
...I have the right meds for that, but they cause other problems, so I'm perhaps too slow to take them when needed...

My friend went through this, too -- not taking the meds soon enough and not calling the doc for something stronger. The first chemo wasn't too bad, and I think that led to the expectation that she could sail through the rest. In her case, the side effects were cumulative, especially the GI symptoms. She quickly learned to take her meds before the nausea took over.

If the side effects of the meds are a deterrent, maybe a talk with your doc would produce less obnoxious alternatives.

Edited at 2010-01-16 05:20 pm (UTC)
Reply | Thread | Link



desperance
User: desperance
Date: 2010-01-16 23:24 (UTC)
Subject: (no subject)
Yup. All of this.
Reply | Parent | Thread | Link



biomekanic: wheat
User: biomekanic
Date: 2010-01-16 17:45 (UTC)
Subject: (no subject)
Keyword:wheat
Sorry about the intestinal issues, I know how that goes.

If you need a restocking on food, let us know. I had to dump my roasted jalapenos ( they had turned gray, and fuzzy, much like my one cat ) but I can make more. I had some ideas for something spicy.
Reply | Thread | Link



User: beth_bernobich
Date: 2010-01-16 18:55 (UTC)
Subject: (no subject)
Keyword:balloon heart
Why didn't I become a talk show host or something?

*Your* show I would listen to.

Also, gentle hugs.
Reply | Thread | Link



martianmooncrab
User: martianmooncrab
Date: 2010-01-16 19:51 (UTC)
Subject: (no subject)
Lower GI distress got significantly

I am finding that specific ingrediants are some of my IBS triggers, the latest one is "enriched flour" which contains ferrous sulfate (the sulfate being the evil component)..

I already avoid cannola oil, artifical sweeteners, any bell pepper, after awhile, the list gets longer and longer. I end up playing this bizarre food version of Sesame Street.. or a Foo Fighters song, I get confused.
Reply | Thread | Link



desperance
User: desperance
Date: 2010-01-16 23:27 (UTC)
Subject: (no subject)
I'm not getting nearly the mileage out of my waking hours I would in ordinary health, but still I walked an hour yesterday, and wrote almost two hours! Wore myself out doing it, though.

Well, yes. Hon, do try to remember that you are not in ordinary health just now, yeah? Former mileage is not to be expected, and overdoing stuff does have consequences. And yes, I know you know all this, but I'm just saying it anyway, 'k?

Also, yay for being nice to police officers in the middle of the night. I too have done this, often and often. Eventually, they mostly got to know me...
Reply | Thread | Link



scarlettina
User: scarlettina
Date: 2010-01-17 04:09 (UTC)
Subject: (no subject)
Well, yes. Hon, do try to remember that you are not in ordinary health just now, yeah?

I have gently emphasized this to him at least once or twice this week. He's not having as much of it as we'd all prefer. But my suspicion is that he wouldn't be Jay if he did.
Reply | Parent | Thread | Link



browse
my journal
links
January 2014
2012 appearances