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Lakeshore
An author of no particular popularity

Jay Lake
Date: 2010-02-15 05:46
Subject: [cancer] A wrap on the weekend, and a couple of lessons learned
Security: Public
Tags:cancer, health
Slept over 8 hours last night, quite solidly with only minor interruptions. I think this means last week's multi-day festival of massive lower GI failure and concomitant sleep dysfunction has drawn to a (relatively) gentle close.

As I've said before, it's like driving a car on ice. Every correction I make for a symptom or an issue risks a more disastrous overcorrection in the other direction. Try to miss the pothole, find myself heading for the ditch. Steer away from the ditch, head for a sheer wall being climbed by a roped-together team of widows and orphans fresh from the bus I just ran off the road. So to speak. (Metaphors tortured professionally here, no appointment needed.)

Two main lessons learned:

When I take Imodium (or any analogous medication), I must take a laxative in the morning to make sure I get a timely system restart. Regardless of whether I feel like it. That's a checklist item now.

Also, I can only generalize from the experience of each chemo infusion round. What works in one round doesn't always translate well into the next round. This means I never really know what I'm doing. I have to accept that, and be accordingly flexible when making self-care decisions. Even with a checklist in play.

I tell you, cancer is one giant set of Valuable Life Lessons™. Some days I feel like I'm living in a Hallmark Movie of the Week cliche.

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User: brownkitty
Date: 2010-02-15 16:12 (UTC)
Subject: (no subject)
Do you have to take that laxative in the morning? Or is this a new routine and subject to change?
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Jay Lake
User: jaylake
Date: 2010-02-15 16:28 (UTC)
Subject: (no subject)
Well, Imodium shuts me down so drastically that I if don't take a laxative in the morning, I get into the kind of nonsense that happened last Thurs-Fri, a loose/blocked feedback loop in my lower GI that is out of control.

Edited at 2010-02-15 04:30 pm (UTC)
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User: brownkitty
Date: 2010-02-15 20:56 (UTC)
Subject: (no subject)
I was wondering, if you can't reduce the Immodium dosage, if there's any reason you can't take them together, and maybe get partial solidification instead of concrete.
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Jay Lake
User: jaylake
Date: 2010-02-15 20:57 (UTC)
Subject: (no subject)
My head may explode at that thought...
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User: brownkitty
Date: 2010-02-15 21:10 (UTC)
Subject: (no subject)
meep? Good/bad/indifferent explode?
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Jay Lake
User: jaylake
Date: 2010-02-15 21:17 (UTC)
Subject: (no subject)
Oh, not good. Heh. The image of Imodium+laxative is, erm...
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User: brownkitty
Date: 2010-02-15 23:02 (UTC)
Subject: (no subject)
Yeah. It was an attempt at a way to adjust the dosage.
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Kate Mulligan Wolfe
User: corasmama
Date: 2010-02-16 02:33 (UTC)
Subject: (no subject)
I've actually had better luck with a stool softener WITH the Imodium than a laxative AFTER. If that makes sense.
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Kate Mulligan Wolfe
User: corasmama
Date: 2010-02-16 02:34 (UTC)
Subject: (no subject)
oh, also, if they put you on zofran for nausea, don't wait to find out if it'll constipate you. IT WILL. I don't know about chemo patients, but no one ever tells the other main group of people who take zofran (pregnant women) about this lovely side effect.
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