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Lakeshore
An author of no particular popularity

Jay Lake
Date: 2010-02-28 11:51
Subject: [cancer] The chemo, it burns
Security: Public
Tags:cancer, child, family, food, friends, health, personal, shellyrae
A good but difficult day yesterday, if that makes sense. Dear friends in town, shelly_rae arrived, dinner with family. But too many things happened in a row, and too many minor things didn't happen right, so I got worn out, badly.

Meanwhile, side effects are kicking up in a new and strikingly unpleasant ways. The inside of my mouth has become so sensitive that even toothpaste burns me. I ate some leftover pizza on the way out the the door yesterday morning, and it burned so much that elusivem and garyomaha had to swing by McDonald's to pick me up a milkshake. This is not a good thing. The burning and sensitivity continues today.

shelly_rae observes that the same process that voids my stomach lining is attacking the cells lining my mouth, and I may have attacked the newly growing replacement cells with hot, spicy pizza, tomato sauce and red peppers. This makes sense to me. Meanwhile, the tip of my tongue is raw, my mouth aches a bit, and I'm very wary of what I put in it.

In other news, my nasal passages have been scabbing over continuously these past few days.

I am not enjoying today very much, even though I am surrounded by people who love me. tillyjane is here doing mom-stuff, the_child is here doing kid-stuff, and shelly_rae is here doing sweetie-stuff. I resent my grumpiness. Thankfully, they do not seem to.

Stoopid chemo.

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User: brownkitty
Date: 2010-02-28 19:54 (UTC)
Subject: (no subject)
Stoopid chemo indeed :(
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User: joycemocha
Date: 2010-02-28 20:06 (UTC)
Subject: (no subject)
Stoopid chemo.

This may be the time to start considering Ensure or Boost, if you're not already. FWIW, DS found Boost to be more palatable than Ensure. Some folks with Crohn's issues swear by the strawberry Boost, as long as it's refrigerated. Refrigeration seems to make all of those supplemental shakes palatable.

The catch is that I think those drinks are also dairy-heavy, which could be problematic with your current lactose-intolerance. I think Boost has dairy/lactose-free versions.

Hugs.
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fjm
User: fjm
Date: 2010-02-28 21:00 (UTC)
Subject: (no subject)
Was about to make the same suggestion. The stuff literally saved my life in '97. You can get soy versions (which was what I used).
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Kate Schaefer
User: kate_schaefer
Date: 2010-02-28 20:25 (UTC)
Subject: (no subject)
My experience with other people's chemo is that tapioca pudding can be a lifesaver, if you like it and can absorb it. It's bland, sweet, high in calories, and can be tolerated and enjoyed by many people even when chemo shuts off all interest in food.
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Kate Schaefer
User: kate_schaefer
Date: 2010-02-28 20:25 (UTC)
Subject: (no subject)
Oh, right. Lactose could be a problem, possibly alleviated by the cooking process.
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Jay Lake
User: jaylake
Date: 2010-02-28 20:30 (UTC)
Subject: (no subject)
Sadly, I've never liked tapioca. May have to try again.
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fjm
User: fjm
Date: 2010-02-28 21:00 (UTC)
Subject: (no subject)
Can you drink coconut milk? You can make rice pudding with pudding rice, a can of coconut milk, and sugar. I can send a recipe if you want. It tastes very good.
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Scott Raun: ShihTzu Josie
User: sraun
Date: 2010-02-28 22:02 (UTC)
Subject: (no subject)
Keyword:ShihTzu Josie
I'd like the recipe! Please?
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fjm
User: fjm
Date: 2010-02-28 22:11 (UTC)
Subject: (no subject)
In practice, only the rice, sugar and coconut milk are absolutely necessary. I have never used the dairy.

90g/3oz/ or third cup of pudding rice (short grained)
600ml/1 pint/two and a half cups coconut milk
300ml/half pint/one and a quarter cups milk
1 large strip of lime rind
60g/2oz/quarter cup sugar
knob of butter
pinch of ground star anise

mix them together, dot with butter (or not), bake for 30mins, Stir. Bake for one to two hours until liquid absorbed and rice cooked.

Frankly my recipe is rice, coconut milk, sugar--bake til done.
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Scott Raun
User: sraun
Date: 2010-11-21 22:03 (UTC)
Subject: (no subject)
I was finally going to try this, and realized it's missing something I don't want to guess at - what temperature do I bake it at?
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fjm
User: fjm
Date: 2010-11-22 15:01 (UTC)
Subject: (no subject)
180 works for most things.
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Keikaimalu
User: keikaimalu
Date: 2010-02-28 21:27 (UTC)
Subject: (no subject)
I don't have suggestions, but I hope this phase of chemo side effects passes soon.
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User: mmegaera
Date: 2010-02-28 22:45 (UTC)
Subject: (no subject)
Keyword:garden
Chemo makes a box of rocks look like a Nobel prize winner.

Cancer makes chemo look like a Nobel prize winner.

IMHO.
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scarlettina
User: scarlettina
Date: 2010-03-01 00:00 (UTC)
Subject: (no subject)
I'm guessing saltiness is a challenge right now, otherwise I'd suggest the cure-all of my ancestors: chicken soup. Or maybe cream of mushroom soup. Or cream of anything soup. Or bisques of one sort or another.

::hugs::
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adelheid_p
User: adelheid_p
Date: 2010-03-01 01:22 (UTC)
Subject: (no subject)
That sounds very frustrating indeed. I hope the soreness passes. It does sound prudent to watch the acidity and spiciness of the foods you eat for a little while until your mouth and stomach have recovered.
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barbarienne
User: barbarienne
Date: 2010-03-01 02:05 (UTC)
Subject: (no subject)
Ugh, lack of interest in food compounded by inability to tolerate food with strong flavors? Yeesh. All the myriad and subtle things start to stack up, don't they.

Hang in there, dude.
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shaolingrrl
User: shaolingrrl
Date: 2010-03-01 03:54 (UTC)
Subject: (no subject)
Mom hated Boost *and* Ensure, though I don't know if that was her or the chemo talking. I wish we'd known about the tapioca pudding.
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Perdix
User: perdix
Date: 2010-03-02 02:32 (UTC)
Subject: (no subject)
I used to drink a lot of Odwalla, Naked, and Bolthouse smoothies, but then I had to cut out cow's milk, citrus, and apple juice because of digestive issues. Now I make myself smoothies with Spiru-tein powder. It's super-easy - 1 scoop of Spiru-tein (I like the vanilla and the strawberry flavors), 8 oz rice/hemp/soy milk, and some frozen fruit (I cut up bananas and freeze them; frozen blueberries and strawberries work well too). The result is full of protein (soy, rice, and pea), spirulina, potassium, calcium, and lots of other vitamin and mineral goodies. Mmmm tasty. I recommend.
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alumiere
User: alumiere
Date: 2010-03-04 18:33 (UTC)
Subject: (no subject)
I know you have problems with dairy, but this may be a good substitute.

I had a craving for Mint Oreo Ben & Jerry's (I rarely eat sweets, but my body was insistent) only the store was out, so I tried Purely Decadent chocolate/mint coconut milk "ice cream". Amazingly I think I love it better than B&J.

They also had a ginger sorbet I may go after next time I want sweets - but it'll take me a month to eat the pint of ice cream that's in the freezer.
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