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[cancer] Wrapup on infusion seven - Lakeshore — LiveJournal
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Jay Lake
Date: 2010-04-12 05:39
Subject: [cancer] Wrapup on infusion seven
Security: Public
Tags:books, calendula, cancer, endurance, health, shellyrae, stories, writing
Infusion session seven of twelve is over, though the aftereffects are not. I am past the halfway point. The overwhelming side effects this time were fatigue (though not nearly as bad as session six), and emotional distress. The fatigue I know how to handle, as much as I hate it. The emotional distress was a bit tougher. I spent a bunch of time feeling insecure, unlovable and just flat down. And I did a poor job of managing it. I made calendula_witch cry at least once.

Sigh.

Awake and functional today, lower GI is re-engaging. During the pre-infusion consultation on Friday, the oncology nurse practitioner gave us a word to describe a digestive issue, which I promptly lost. Basically, it's the sense that after I've sat down and passed stool, I have to spend another 15 or 20 minutes with the feeling there's more to come. Sometimes there is, sometimes there isn't. The phantom feeling a name, something like "surissis", but it dropped right out of my head. Lots of that going on, especially right after the infusion ETA: Felicitous Sk8er informs me the word I want is "tenesmus".

Amusingly, the same oncology n-p, when I'd described all the stresses and weirdness of the previous two weeks (Mother of the Child in the hospital, shelly_rae injuring her foot, me being so ragged, etc.), asked me why I wasn't drinking. In fact, she recommended we all take up drinking. I think she was kidding.

So now I roll into another 11 days without new poisons in my system. shelly_rae goes home first thing this morning. calendula_witch goes home first thing tomorrow morning. Hoping to finish the first draft of "The Stars Do Not Lie" by Wednesday or Thursday. Then deadlines for Endurance and the Sekrit Projekt. Life goes on, as it has the habit of doing.

Post A Comment | 8 Comments | | Link






Joy
User: cithra
Date: 2010-04-12 14:17 (UTC)
Subject: (no subject)
You are loved.
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The NewroticGirl
User: newroticgirl
Date: 2010-04-12 16:56 (UTC)
Subject: (no subject)
You are much loved, Mr. Lake.

I'm having my own post-surgical awesome butt times lately. I like the new vocab word.
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Jay Lake
User: jaylake
Date: 2010-04-12 17:52 (UTC)
Subject: (no subject)
It's like being three years old!
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Karen
User: klwilliams
Date: 2010-04-12 23:52 (UTC)
Subject: (no subject)
You know, drinking would probably help. But I wouldn't worry about being unlovable, with that crew.
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shaolingrrl
User: shaolingrrl
Date: 2010-04-13 06:36 (UTC)
Subject: (no subject)
Three-year-olds are great! Nothing wrong with three-year-olds.
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shelly_rae: Spoons
User: shelly_rae
Date: 2010-04-13 06:51 (UTC)
Subject: (no subject)
Keyword:Spoons
See, no need to worry about me. I'm just fine. It's only a flesh wound--wait--it's not even that. Back to work I go.

You forgot about the good parts. Dinner with your chosen family or your bucket I'm not sure which or both hmm. Sold something and getting something else translated. Watched movies. OK yes, LASERBLAST was bad, truly awful but perfect for situation. "Don't go putting any part of yourself in alien machinery ya hear?" Happy kid, happy food, clean tub (calendula_witch so rocks for that and my pretty necklace) and kitty entertainments.

Plus you walked, you laughed, we all told stories. We had excellent conversations there was much of good and happy too.

And here you are, on the other side of it. Plus, no worries, I even get to go back to bike shopping. And thinking about riding to work. Well, not tomorrow.
sleep well dear.
Anon

Oh, please write "grapefruit spoons" on the list. Thanks
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Jay Lake
User: jaylake
Date: 2010-04-13 12:19 (UTC)
Subject: (no subject)
Grapefruit spoons it is, dear. And yes, it was a good weekend. Love you.
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austspecfic
User: austspecfic
Date: 2010-04-13 08:15 (UTC)
Subject: (no subject)
ah gee. I hope it gets better.
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