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Jay Lake
Date: 2010-04-27 05:48
Subject: [cancer] An update and an overview
Security: Public
Tags:cancer, health, personal
Horrid night's sleep. Given that I slept 9-10 hours per night the previous three nights, this is perhaps unsurprising, but still a real disappointment. Going to be a bad day.

In a larger sense, I'm now 2/3 done. Eight chemo infusion sessions out of twelve. Four more to go, currently expected to end on June 18th, assuming I don't have to postpone any due to dropping white blood cell counts or other side effects. Every infusion session is identical in terms of medication and protocol, every infusion session is different in terms of practice and side effects. I am getting better at this, but it's tough.

I track the side effects in a spreadsheet. I rate each by intensity, trend and specific experiences. Here's everything I've registered thus far:

  • Headache

  • Confusion

  • Extreme fatigue

  • Oversleeping

  • Undersleeping

  • Sleep dysfunction

  • Bowel distress/constipation

  • Bowel distress/severe diarrhea

  • Peripheral neuropathy

  • Cold sensitivity

  • Impaired short term memory

  • Impaired long term memory

  • Impaired thinking skills

  • Slowed thinking skills

  • Impaired reading

  • Dyscalculia

  • Impaired observation/EQ

  • Loss of appetite

  • Food 'crashes

  • Nausea

  • Sexual dysfunction

  • Excessive dental plaque

  • Excessive ear wax

  • Hoarseness

  • Tissue in stool

  • Nasal sores

  • Nose bleed

  • Mouth sores

  • Mouth pain

  • Emotional 'crashes'

Some of the side effects are cumulative, some are stable, some are episodic. I keep meaning to make a chart, to document the experience more fully. But I'm always too damned tired. Fatigue is the killer.

I am sick and tired of being sick and tired.

Post A Comment | 6 Comments | | Link

Kari Sperring
User: la_marquise_de_
Date: 2010-04-27 13:20 (UTC)
Subject: (no subject)
Charts can wait. Look after yourself as the priority.
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User: scott_lynch
Date: 2010-04-27 13:42 (UTC)
Subject: (no subject)
Jesus, man. Hang on tight. If you can even contemplate tracking and charting this stuff, I'd say you're well ahead of where I'd be, were in your shoes.
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User: kellymccullough
Date: 2010-04-28 02:04 (UTC)
Subject: Off topic
Hey Scott, very long time no see. If you're feeling up for it sometime we should grab that long-delayed beer or coffee.
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They Didn't Ask Me: lifesavers-winslet
User: dr_phil_physics
Date: 2010-04-27 17:46 (UTC)
Subject: (no subject)
Forgive me for being amused, but I cannot get out of my head the image of a little bit of earwax saying, "Me, too! I wanna be a side effect!" and screwing up its little eyes and then, straining very hard, suddenly getting larger. (grin)

Dr. Phil
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User: martianmooncrab
Date: 2010-04-27 19:58 (UTC)
Subject: (no subject)
I started thinking you left a couple of things out but then, give it some time and you can add to the list.

This too will pass.
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User: kellymccullough
Date: 2010-04-28 02:06 (UTC)
Subject: (no subject)
Damn, Jay, that's brutal. It's good to hear that this round is going a little easier though and better to hear that the chemo's 2/3 done.
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