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Lakeshore
An author of no particular popularity

Jay Lake
Date: 2011-06-03 05:17
Subject: [cancer] And so it goes
Security: Public
Tags:cancer, conventions, food, friends, health, jaycon, personal, photos
This post-chemo week has been a lot less stressful than the week following session one. That is entirely up to good nausea control. I'm on the new meds (Zyprexa) during the chemo cycle, and I'm being smarter about my eating. I did screw up a little yesterday morning, as I simply wasn't hungry and thus skimped on breakfast. The several days previously I'd been eating a high-protein breakfast consisting of a one-egg omelet with cheese, olives and bacon. (Ever since cutting way back on the carbs, I've been craving protein like a madman.) Yesterday I ate lightly, and spent the morning balancing mild nausea, and once, a severe bout, until I'd gotten stabilized again.

Okay, lesson learned. Egg on the stove shortly from now.

However, for the past two days the lovely and talented [info]zellandyne has been visiting, and she is something of an expert in alternative forms of cookery. We popped by Bob's Red Mill yesterday — the company outlet and showroom is <5 minutes drive from my house — and scored some almond flour and some coconut flour. Last night Irish soda bread was made. Serious yum. So this morning I'm going to try to whip up some scratch biscuits using a mix of the two flours, to see if I can have something with my egg that doesn't involve wheat flour.

Otherwise continuing to struggle with intermittent fatigue, which became overwhelming at a couple of points yesterday. I expect to be fairly perky for the JayCon festivities, which actually begin today with a small gathering before spilling over into the weekend and the week following. Out-of-town friends are arriving today. Tomorrow ought to be quite something.

And of course, the hair loss. I've lost more than half my scalp hair in the past two days. My beard is making the old college try as well. I may be bald by the end of the weekend.

IMG_1315

It's a weird feeling, having the hair just come off as I shower, as I brush, as I touch it. There's something deeply disturbing about that. Yet at the same time, I seem to be accepting this as a part of the chemo process. It hasn't been emotionally triggering, for example. Though I do very much miss my real hair.

And so it goes.




Photo © 2011, Joseph E. Lake, Jr.

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The NewroticGirl
User: newroticgirl
Date: 2011-06-03 15:10 (UTC)
Subject: (no subject)
Sad to be missing another Jaycon! :( (Alas, working weekends has its disadvantages...)
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Kari Sperring
User: la_marquise_de_
Date: 2011-06-03 15:20 (UTC)
Subject: (no subject)
Hug.
I can't make Jaycon. I looked hard at flights and money and it wouldn't add up. I wish I could have. Much love
Kari xx
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Jay Lake
User: jaylake
Date: 2011-06-03 15:32 (UTC)
Subject: (no subject)
Some day I really am going to come to the UK, you know. 'tis my ancestral homeland and what all.
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MEG: monument valley
User: djelibeybi
Date: 2011-06-03 16:39 (UTC)
Subject: (no subject)
Keyword:monument valley
If you do, you'll be sure of a warm welcome.

Pleased to read that this session wasn't as bad as the first and that the nausea appears to be manageable. I remember being hit harder that I anticipated when I lost my hair the first time. Second time, I pre-empted it by cutting most of it off.

I kept the beard.
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Jay Lake
User: jaylake
Date: 2011-06-03 16:47 (UTC)
Subject: (no subject)
I look forward to it!
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Kari Sperring
User: la_marquise_de_
Date: 2011-06-03 18:42 (UTC)
Subject: (no subject)
That would be lovely and you would be welcome here for as long as you wanted to stay -- we're 40 mins from central London, and have easy road links to Oxford, York, Birmingham, Glastonbury, etc etc. Just say the word.
And have a lovely time tomorrow. If I can't get to Portland this weekend, I shall be having a serious attempt to do so around the time of World Fantasy, as the beloved has a business trip associated with it, and I do not want to spend a week hanging about in hotels in Cypress CA.
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mlerules
User: mlerules
Date: 2011-06-03 15:34 (UTC)
Subject: (no subject)
Glad to hear that the hair stuff isn't emotionally triggering. (That'd been at the heart of my concern 'n' suggestion re: getting it shaved.) Also glad the nausea seems controllable.

Happy start of new year for the you!
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Keikaimalu
User: keikaimalu
Date: 2011-06-03 15:44 (UTC)
Subject: (no subject)
What's the deal with wheat flour? Is it a gluten-sensitivity thing? Or a carb thing?
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Jay Lake
User: jaylake
Date: 2011-06-03 15:46 (UTC)
Subject: (no subject)
Carb thing. I'm supposed to be minimizing simple sugars and simple carbs, including white flour products.
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W. Lotus: Peaceful
User: wlotus
Date: 2011-06-03 16:07 (UTC)
Subject: (no subject)
Keyword:Peaceful
The rapid hair loss surprised my mom when she did chemo last year for breast cancer. In spite of everything I and one of her fellow survivors told her, she was holding onto hope that she'd be the exception to not lose any. (Mom has always been good at denial, god love her. And now I see where I inherited my "it may have happened to others, but it won't happen to me" tendencies.) Thank goodness she listened to my subtle hints about having a wig ready in advance and shaving her head to take control of the hair loss process.

I'm glad you are able to accept the hair loss as part of the process.
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Jay Lake: jay-bald_2
User: jaylake
Date: 2011-06-03 16:30 (UTC)
Subject: (no subject)
Keyword:jay-bald_2
I grieved my hair a lot during the last chemo. I am glad I don't seem to need to rewalk that particular path of grief this time.

And good for you for keeping ahead of your mom.
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