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[cancer] What the clean CT scan does and does not mean - Lakeshore — LiveJournal
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Jay Lake
Date: 2011-11-08 08:04
Subject: [cancer] What the clean CT scan does and does not mean
Security: Public
Tags:books, calamity, cancer, child, health, sunspin, whips, writing
My CT scan came back clean yesterday, as noted here: [ jlake.com | LiveJournal ]. I am overwhelmed both by the news, and by the good wishes that have poured in via my blogs, Twitter and Facebook. As I said yesterday, I was practically in tears with relief.

Let me talk a bit about what this does and doesn't mean. While the clean CT is profoundly good news, it's only a step on a long, difficult and dangerous road. As a practical matter, it means I won't be going right back into treatment in the first quarter of next year. That in turn means I can focus on being a parent to [info]the_child. It means I can do the required revisions on Calamity of So Long a Life, and at a minimum, get ginned up for the initial drafting second Sunspin book, The Whips and Scorns of Time. It means I can hit a couple of conventions in Pacific Northwest, if the money holds up.

It does not mean I am healthy, or out of the woods on cancer. Every four months for the next two years (I think) I have to be rescanned. After that it drops to every six months. Each time I hit a scan threshold, we're looking again for metastases. And recall that I've metastasized twice now, both times about a year after the prior presentation. Primary cancer was diagnosed in April of 2008, the lung metastasis was first detected in April of 2009 on a CT scan, and the liver metastasis was detected in April of 2010 from a spike in my CEAs. So being clean now might only mean that the next metastasis hasn't gotten big enough to be detected. Next April's scan is going to be a huge emotional wall.

I get my life back, for now. Most of the time between now and April I'll be spending recovering from chemo, so it's not like I'll be 100% Jay before we hit the next checkpoint. But at least I'm out from under the swordspoint for a while. Profound relief, tempered heavily by a suspicious watchfulness for the future.

And the present ain't no great shakes. I've gone the last two nights with serious sleep deficits. My bowels have been liquid for eight days straight, which is getting very old. That's also giving me a serious aversion to eating; I don't think I managed 1,000 calories yesterday. Three more chemo sessions to go, with everything that entails. It's a damned tough road. But the clean scan — that's a step in the right direction. I'm looking forward to not living in fear and dread for a while.

Post A Comment | 12 Comments | | Link

User: deborahjross
Date: 2011-11-08 17:00 (UTC)
Subject: (no subject)
As my yoga teacher says, progress is directional. It doesn't matter how far you can go during any individual class, as long as your intention is in the right direction.
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User: jackwilliambell
Date: 2011-11-08 17:07 (UTC)
Subject: (no subject)
I vote for living for the day and letting the future take care of itself. This is great news!
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Jon Hansen
User: jonhansen
Date: 2011-11-08 18:41 (UTC)
Subject: (no subject)
That definitely counts as a win, then. Glad to hear it.
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User: biomekanic
Date: 2011-11-08 19:05 (UTC)
Subject: (no subject)
I'm damned glad to hear it's clear.

I hope the GI issues go away soon, they really suck. After about a year of the liquids, I wouldn't wish that on anyone.
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User: fledgist
Date: 2011-11-08 19:55 (UTC)
Subject: (no subject)
Missed the first news of this. I'd say it counts as a win. Getting back to whatever passes for normal is a win. It is, of course, going to be a different normal. There is never a going back.
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User: cocoajava
Date: 2011-11-08 21:39 (UTC)
Subject: (no subject)
I'm counting this as a win, in my 'good news about my friends' list. And I plan to stick with your life, as much as you care to share it, for the long haul!
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User: history_monk
Date: 2011-11-08 22:39 (UTC)
Subject: (no subject)
Splendid news, and long may it continue.
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Rick Moen
User: rinolj
Date: 2011-11-09 02:00 (UTC)
Subject: (no subject)
Thank you for the good news, Jay. I'll be drinking a glass of good port to celebrate your improved prospects.

Rick Moen
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User: mectech
Date: 2011-11-09 04:33 (UTC)
Subject: (no subject)
also late to the party, but with a heartfelt woohoo!
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User: evaleastaristev
Date: 2011-11-09 04:53 (UTC)
Subject: (no subject)
Here's to a life of clean scans! I'm so happy for you and the family.
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That Which Fights Entropy: me with scarf
User: amberite
Date: 2011-11-09 05:12 (UTC)
Subject: (no subject)
Keyword:me with scarf
I'm very, very happy for you, though also sorry that being out of the woods isn't being out of the forest.
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User: barbarienne
Date: 2011-11-09 20:48 (UTC)
Subject: (no subject)
I'm so sorry for all the other unpleasant parts of this business, but I'm extremely glad to hear that you've passed this milestone. May many more clean test results occur in your future.
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