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An author of no particular popularity

Jay Lake
Date: 2012-09-04 04:03
Subject: [conventions|cancer] Seeing Worldcon through the eyes of cancer
Security: Public
Tags:cancer, conventions, health, personal, publishing, stories
Chicon 7 was by almost any measure a successful experience for me. Lovely food was to be had. I caught up with old friends and made some new ones. I sustained a moderately full programming load with no difficulty, and had a lot of fun. I was interviewed for two podcasts, and gave well over a hundred autographs. Several rounds of writing and publishing business were conducted. I was invited to participate in the Hugo awards ceremony in my informal capacity as spokesmodel for the Campbell Award Regalia, and had a terrific time hearing thousands of people cheer my name as I made a brief stage appearance to crown E. Lily Yu. I never wiped out physically or socially, and the emotional stresses of cancer were largely kept under control, with a little help from my friends. I even managed to walk every day.

All in all, quite the satisfactory experience.

At the same time, by Sunday afternoon, I felt as if my head had been pounded into concrete. By Monday morning, I didn't really have the heart to face anyone or anything.

As I've said before, the current round of cancer will not be the one that kills me. I don't have a terminal diagnosis. I'm certainly not dying now. But it points toward overwhelming odds that I have a handful of years left. One fairly reasonable course forward from here has me never fully out of treatment again, depending on the speed and intensity of future metastasis development. Almost all of the forward paths have me spending more than half of what remains of my life very ill from either treatment or end-of-life decline.

As it happens, I was rather ill at both of the Worldcons prior to this one, in Reno and in Melbourne. There's a perfectly good chance I'll never make another Worldcon, depending on the treatment cycles of my cancer.

I was saying good-bye. And a hell of a lot of people were saying good-bye to me.

There were occasions where I explicitly acknowledged this. As I commented more than once, if we still beat this thing, then four or five years from now we'll all be sitting around laughing about what an idiot I was to be in such a panic back in 2012. That's one of those little bits of magic spell we pass socially to remove some of the awkwardness of being the ghost at the feast.

There were also occasions where the hard reality intruded brutally. On Sunday, I had an hour-long meeting with Lynne Thomas, of Northern Illinois University, who is my archivist. We explicitly discussed end-of-life and posthumous issues. I asked her a lot of questions about transition planning, about confidentiality, about how the archive would intersect with my literary estate. We got into topics such as the terms-of-service on my social media accounts and whether and how the library would have legal access to those accounts after my death. We talked a lot about how the archive will intersect with the interests of [info]the_child. She took home action items for herself, her technical team and her legal team, as I am essentially a test case for a number of issues. I took home corresponding action items, albeit somewhat less bedeviling.

Not long thereafter, I had an hour-long meeting meeting with my agent Jennifer Jackson. Again, we explicitly discussed end-of-life and posthumous issues. Literary executorship, contracts, a whole range of topics were covered. This includes discussion of my death book project. Again, I took home a number of further action items.

An hour or two after that, at my reading I read my short story, "The Cancer Catechism", which will be in Dark Faith 2. It's a brutal story. Reading it, I grew angrier and angrier. The audience seemed overwhelmed as well.

Walking out of that reading was the point at which I felt like my head had been pounded into concrete.

This is hard. Damned hard. It colors everything I do, everything I think about, what everyone says to me., what everyone around me does. Hard, and overwhelming.

Post A Comment | 12 Comments | | Link

User: dichroic
Date: 2012-09-04 11:09 (UTC)
Subject: (no subject)
I do hope you are sitting around laughing, at WorldCon 2017.

(I'm not sure if it is useful or helpful for you for people to be saying that. I thought about the possible downsides of saying it, and about the downsides of *not* saying it, and from what I could judge the latter seemed worse. Sorry if I guessed wrong.)
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Jay Lake
User: jaylake
Date: 2012-09-04 11:14 (UTC)
Subject: (no subject)
Is all good. No worries.
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User: martianmooncrab
Date: 2012-09-04 18:37 (UTC)
Subject: (no subject)
its one thing to know you have a sell by date, its another to actually look at it and do the numbers.

Good luck..
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Jeff: Me
User: jeffreyab
Date: 2012-09-04 19:55 (UTC)
Subject: (no subject)
I am glad you came because some people get to say they went to worldcon in Chicago and meet famous author Jay Lake.

I also thought you looked better than you did back in January a good omen for your future treatment I hope.
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User: deborahjross
Date: 2012-09-04 21:05 (UTC)
Subject: (no subject)
I am so often reminded that courage is not the absence of fear, it is the ability to do what is right in spite of it.
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User: fjm
Date: 2012-09-04 22:16 (UTC)
Subject: (no subject)
I a planning to come visit when we can work out the best time.. [blows a kiss across the Atlantic]
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Jay Lake
User: jaylake
Date: 2012-09-05 12:58 (UTC)
Subject: (no subject)
You are a darling and a dear.
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User: klwilliams
Date: 2012-09-04 22:27 (UTC)
Subject: (no subject)
I realized this year that I will never again go to a comic book convention. I just don't have the mobility, or the energy. Not the same thing as impending death, but it's a little death, the kind that comes with age. The first half of my life was focused on me gaining things. Now it's abruptly reversed to start losing things. I'm sorry that your transition will be so much shorter, but happy that you have good friends and loved ones to share it with you.

Yes, cancer sucks.
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User: fledgist
Date: 2012-09-04 22:53 (UTC)
Subject: (no subject)
It was wonderful to meet you in corpore at long last. The gloom that came and went over you from time to time was rather obvious, and quite understandable. Indeed, the fact that you managed to be sociable and cheerful so much of the time is a testament to how fearless you are.
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User: mmegaera
Date: 2012-09-05 00:39 (UTC)
Subject: (no subject)
Jay, you remind me of Miles Vorkosigan in a lot of ways, including the health issues one.

And that's a very high compliment.
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triskelmoon: eyepatch
User: triskelmoon
Date: 2012-09-06 00:17 (UTC)
Subject: (no subject)
I'm so glad I got a chance to hug you, and sad we didn't get time to hang out. Please do put me on your list of Portland Peeps should you need help or just dinner company.
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my journal
January 2014
2012 appearances