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Jay Lake
Date: 2012-09-30 05:41
Subject: [cancer] Sun sensitivity
Security: Public
Tags:cancer, health, personal
Yesterday we went out looking at Vaux's Swifts. Which was a lot of fun.

Thanks to my friends Vectibix and Doxycycline, I now have very sensitive skin. I am especially sensitive to sunlight.

After just a week, the skin on my face is tight, brittle, tender and inflamed. I have a spray of acne on my chest and upper back as well. I use hypoallergenic lotion on my skin, as well as 1% Hydrocortisone cream. I go out with heavy sunscreen on my face, neck and hands. I wear a hat, long pants and long sleeves. I should be wearing a hood and possibly a scarf or kerchief.

I am beginning to flinch at any sunlight. My face hurt last night, just from the car ride to the swifts. I feel like a freaking vampire.

And this is only the beginning. By next spring, my skin ought to be a real party.

Post A Comment | 12 Comments | | Link

User: etcet
Date: 2012-09-30 13:10 (UTC)
Subject: (no subject)
I am contemplating the thorough wrongness of a Hawaaian print burqha.
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User: radiantlisa
Date: 2012-09-30 13:33 (UTC)
Subject: (no subject)
Oh, yes, this! So wrong, and so utterly perfect ...
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mlerules: Cruella
User: mlerules
Date: 2012-09-30 15:37 (UTC)
Subject: (no subject)
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jtdiii: Bio
User: jtdiii
Date: 2012-09-30 13:43 (UTC)
Subject: (no subject)
Embrace the inner vampire... just don't sparkle.
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User: autopope
Date: 2012-09-30 15:14 (UTC)
Subject: (no subject)
Hydrocortisone cream: please tell me you're using it under medical advice, right? At least if you're using it anywhere near your eyes or mucus membranes. (Corticosteroids and eyeballs can be dangerous, for "going blind" values of dangerous, and should only be used on the face under the advice of a dermatologist.)
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Jay Lake
User: jaylake
Date: 2012-09-30 16:05 (UTC)
Subject: (no subject)
Yes, very specifically at the direction of my oncologist.
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User: cypherindigo
Date: 2012-09-30 15:24 (UTC)
Subject: (no subject)
Photosensitivity really sucks, I am naturally sun sensitive, and with my Lupus/RA meds even more so.

Early mornings and evenings will be your best time for outdoor activities.
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mlerules: canoodle
User: mlerules
Date: 2012-09-30 15:36 (UTC)
Subject: (no subject)
Thank goodness you're starting this now, as the weather cools off and the days get shorter rather than as Spring returns. Yeah, that's the silver lining to a grey sitch...
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User: (Anonymous)
Date: 2012-09-30 17:26 (UTC)
Subject: vampirism
My significant other and I find it very amusing to cower and hiss when we leave the house on a sunny day, as if we are vampires suffering in the light.

Perhaps you could forgo your usual attire for all-black goth apparel. Then your extra coverage will seem fashionable. ;)

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User: xathras
Date: 2012-09-30 17:33 (UTC)
Subject: (no subject)
You might want to try moisturizing with straight coconut oil. It helped when my usual moisturizer started stinging. Also seemed to make some skin issues I had at the time heal faster compared to areas where I didn't use the coconut oil. Warning: you will smell like a macaroon if you try this.
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User: anghara
Date: 2012-10-01 03:50 (UTC)
Subject: (no subject)
Jay, have you tried straight aloe vera gel? Seiously, it works wonders and I don't think it would aggravate anything but it might help quite a bit. The downside is that you can stay a bit "sticky" afterwards if you apply a quantifiably "large" amount of gel - but hey, it'll let you out in daylight...
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smoking catnip and chasing my tail: EVIL
User: jettcat
Date: 2012-10-01 03:52 (UTC)
Subject: more importantly
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