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Jay Lake
Date: 2012-10-19 05:54
Subject: [cancer] Chemo, discontented - in which I am postponed a week
Security: Public
Tags:cancer, health, personal
I was supposed to have chemotherapy session three of series three today. This would have been my twenty-seventh round of chemotherapy in the past three years for those keeping score at home. However, yesterday's blood tests revealed that my neutrophils were down severely, below half of the minimum standard value. Which given that I came off the last chemo session eleven days previously means they were probably even more dreadful earlier on.

For you med stats geeks:

ComponentValueStandard RangeUnits
NEUTROPHIL% POC21.250.0 - 70.0%
NEUTROPHIL# POC0.81.8 - 7.7K/cu mm

In plain English, this means my immune system is utterly borked. And has been for at least a week.

So chemo rolls forward to next Friday, October 26th. This plays merry hell with my caregiver schedule, and also means my final chemo rolls into Christmas, essentially. I'd hoped to be a little better at the holidays while on the surgery break, but that's already iffy now. If I have to skip one more chemo, that's blown completely.

This also means I'm going back on Neulasta, which can hurt like a son of a bitch due to the marrow blooms it creates. That in turn generates overly high pressure inside the bones, which I tend to experience as crippling back, hip and pelvis pain. All that and a skin condition are chemotherapy's gifts to me.

And even though I'm not on the needle this weekend, I'll still be hiding at home. Fatigue and spoons continue to be a material issue. More to the point, I'm significantly immunocompromised, and don't need to be going to parties or the movie theater or whatever where there are lots of other people. Especially during the fall cold and flu season.

In other news, still miserable from the Vectibix rash and acne, though it's getting a little better. A minor blessing of skipping chemo is the skin conditions can clear more. A minor curse is it will take that much longer for those reactions to peak and settle.

Fuck cancer.

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Kari Sperring
User: la_marquise_de_
Date: 2012-10-19 13:03 (UTC)
Subject: (no subject)
Fuck cancer.
And much love to you.
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Angie: New Me
User: aiela
Date: 2012-10-19 13:38 (UTC)
Subject: (no subject)
Keyword:New Me
I'm so sorry, Jay. Between this and my sister finding out yesterday that the radiation had not killed all of her latest metastases, and she's going to have to go back on Alimta for a while, I am in full blown FUCK CANCER mode today.

Fingers crossed that you get through this and get back to cancer-killing soon.
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Jay Lake
User: jaylake
Date: 2012-10-19 13:45 (UTC)
Subject: (no subject)
Good luck and good health to your sister.
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User: threeoutside
Date: 2012-10-19 16:21 (UTC)
Subject: (no subject)
Fuck GODDAMN cancer.

Hugs, dood.
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User: elisem
Date: 2012-10-19 16:26 (UTC)
Subject: (no subject)
Totally fuck cancer.

As soon as I get home, those bells are on the way.
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User: martianmooncrab
Date: 2012-10-19 17:09 (UTC)
Subject: (no subject)
from your tagline, I started to think..

This is the Chemo of my Discontent.. and thought, well.. Jay could certainly update Shakespeare.

Fingers crossed for you.
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shelly_rae: Grumpies
User: shelly_rae
Date: 2012-10-19 18:39 (UTC)
Subject: (no subject)
Hey Jay--remember your spoons. You traveled last week, you went to an event. I'm not surprised that your chemo got bumped and your immune levels are whacked. It happened before. Cancer sucks indeed. Be kind to yourself. Sleep. It's frustrating, yes. I hate that I need 8-10 hours of sleep a day to function. It's such a waste of time. Control what you can. People will adjust and it'll be ok.
Be well.
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frabjouslinz: Me Street
User: frabjouslinz
Date: 2012-10-19 21:20 (UTC)
Subject: (no subject)
Keyword:Me Street
That sucks. I'm sorry. I hope things are better next week. For some definition of better. Love to you.
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Rowan aka: The Seticat: med - dr-teddybear - lizardspots
User: seticat
Date: 2012-10-19 22:08 (UTC)
Subject: (no subject)
Keyword:med - dr-teddybear - lizardspots
Ah, Jay - this sucks.

I am not your clinician nor one of your care givers, but I do hope everyone is wearing a mask around you right now until your neutrophils come back from vacation.

[hope the package with the spoons and the bells made it through okay]

Edited at 2012-10-19 10:09 pm (UTC)
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Jay Lake
User: jaylake
Date: 2012-10-20 16:13 (UTC)
Subject: (no subject)
I have a lot of packages that I'm photodocumenting for a blog post in the near future.. Did yours come from you directly, or did you have it shipped?
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Rowan aka: The Seticat: * cat - craft - djinni
User: seticat
Date: 2012-10-21 01:14 (UTC)
Subject: (no subject)
Keyword:* cat - craft - djinni
Right from me. It will have an Idaho return address and say 'seticat'.

It's good to hear there's no shortage of packages coming in.
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User: keikaimalu
Date: 2012-10-20 00:00 (UTC)
Subject: (no subject)
Sorry to hear this, Jay. I wish you fortitude, a quickly recuperated immune system, a speedy and permanent resolution to this latest cancer bout, and the easing of any treatment-related suffering.

I realize that likely the last thing you need is more home remedy suggestions, but I find that taking fish-oil supplements keeps my skin healthier. FWIW.
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Jay Lake: sanguine-pooh
User: jaylake
Date: 2012-10-20 16:12 (UTC)
Subject: (no subject)
I'm not allowed to take fish oil orally. It's an anti-oxidant that undermines the effectiveness of my chemo.
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