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Jay Lake
Date: 2012-11-12 07:52
Subject: [cancer] Chemo series three, session four, day three
Security: Public
Tags:cancer, family, friends, health, healthcare, personal
Yesterday I came off the needle. It was also a day with a very crowded house, which eventually became confusing, then overwhelming for me. I love my friends and family, I love visitors, but not always all the very same time. It didn't help that the de-needling process ran into some snags with retracting the Huber needle.

Mostly though I was in a mood due to the disturbing news about the CEA levels. [ jlake.com | LiveJournal ] There is one possible benign interpretation, that I'm experiencing a "CEA flare". However, I've never experienced such in the past, and my CEA response have always been a bit idiosyncratic. My oncologist doesn't seem to think this is likely either, though there's no point in further speculation until we see the imaging. (Beyond feeding my imagination, I suppose.) I'll be in to the oncology clinic this afternoon for my Neulasta shot, at which point we'll also schedule the CT and go from there.

There's some genetic testing available for my tumor tissue, that [info]cathshaffer has done a lot of good work hooking me up for. Essentially, that's an option for verifying whether we're targeting my tumors with the right chemo drug series. It's way expensive, and almost certainly out of pocket as the procedure is still experimental, so a bunch of logistics and some fund raising may be in order. Not to mention some serious coordination between my hospital and the offering lab. Stuff to think about, stuff to do.

Feeling pretty overwhelmed here.

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User: klwilliams
Date: 2012-11-12 16:25 (UTC)
Subject: (no subject)
Genetic targeting of cancer tumors seems to be effective, in the little internet reading I've done, anyway. Be worth crowdsourcing for, given your popularity.
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User: shelly_rae
Date: 2012-11-12 16:29 (UTC)
Subject: (no subject)
My memory isn't good but Didn't you have a CEA flare up in the first series?
Be well.
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mlerules: Emily - NYEveY2K
User: mlerules
Date: 2012-11-12 19:47 (UTC)
Subject: (no subject)
Keyword:Emily - NYEveY2K
Sorry 'bout overwhelm, and well, everything...

Here's a cheesecake shot of me from NYEve 2000 to help make it a bit better, at least briefly. ;-)
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User: martianmooncrab
Date: 2012-11-12 20:53 (UTC)
Subject: (no subject)
Lets sequence Jays DNA! I will mail a few small unmarked bills to your PO box for that.
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Kari Sperring
User: la_marquise_de_
Date: 2012-11-12 21:59 (UTC)
Subject: (no subject)
Much, much love.Kari xx
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User: keikaimalu
Date: 2012-11-13 03:38 (UTC)
Subject: (no subject)
I swear cancer patients (and their families) need an agent or business manager, someone to make sure errands get run and doctors get followed up with and health insurance agencies coordinated while the patient (and family) huddles and shivers in the corners.

It's just too much to expect someone going through all that to handle all the mundanities of life and the complexities of medical paperwork and research too. But that's the system we've got, alas.

I'm glad you've got so many good people in your corner.
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