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Jay Lake
Date: 2013-01-11 05:18
Subject: [cancer|personal] The fundraisers
Security: Public
Tags:cancer, documentary, friends, health, personal, videos
I hardly know where to begin. Perhaps at the beginning?

In the past three days, almost $50,000 has been raised in my name in two separate fundraisers. Both have made goal, both are still ongoing with stretch goals and level bonuses.

The first is The Lakeside Kickstarter to support continued filming of the ongoing documentary project. Waterloo Productions has been very generous with its time and resources, but the twists in my healthcare journey have thrown kinks into their budget. I really want to thank everyone who contributed to keeping that project afloat, because I think this is an important atory to tell.

The second is the Sequence a Science Fiction Writer Acts of Whimsy fundraiser, which made its initial goal in five hours and as I write this is closing in on its second stretch goal. There's some pretty hilarious level bonuses in this campaign. Th Acts of Whimsy fundraiser is intended to pay for genome sequencing of my tumors, an expensive procedure not yet part of the standard of care nor covered by health insurance. We're running out of treatments for me, and such a test may provide new insights into treatment direction. (This is explained in detail at the fund raising site.) Again, I cannot possibly thank everyone who participated and continues to participate.

That such a process in the middle of this very hard week could take place has amazed me. Boggled me. I had no idea there was this much support out there. So many people have given, almost 800 as I write this, some of them so obviously at a stretch it makes my heart ache. People I know for a fact are out of work and looking for jobs, people I know for a fact are living on limited budgets, as well as friends, fans and strangers from all walks of life and economic circumstances, each as generous as they can be, some generous beyond reason.

Likewise the Internet support, from blogs and Web sites and tweets, all the way from individual writing blogs to Boing Boing, Whatever and supportive tweets from the Bloggess. That signal boost has been amazing.

You people are amazing. But I think I said it best in this video from yesterday.

Thank you. I love you all.

Post A Comment | 15 Comments | | Link

User: intelligentrix
Date: 2013-01-11 14:31 (UTC)
Subject: (no subject)
I'm just grateful to have an opportunity to do something construct to help you fight this, rather than just watching helplessly from the sidelines. I, selfishly, want the opportunity to spend some time hanging out with you at a convention or Clarion West party (if I ever make it out there for one again). I was too shy the last time we were at a party together, and I regret that. Fuck cancer.
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Jay Lake
User: jaylake
Date: 2013-01-11 14:41 (UTC)
Subject: (no subject)
Well, you definitely should talk to me! If I'm there, I'm there to meet and greet. I'm even nice to shy persons. ;)
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Debbie N.
User: wild_irises
Date: 2013-01-11 15:26 (UTC)
Subject: (no subject)
A while ago, you posted a poll about your cancer journal, and one of the questions was something like "What's hardest for you about reading this?"

My answer was "Not being able to help" and I've revisited that in my mind a number of times, because I think it came out wrong, especially in light of some things you've written since. While I would love to be able to "help" you survive, to be the statistical outlier or miracle, not being able to help with that is not the hard part for me.

The hard part is not being able to help with the mundanity, not knowing you well enough, or being geographically convenient, to take some of the burden off your family and loved ones, to be there on some of the roughest nights. You reveal yourself so nakedly in your journal that it makes me feel like I love you, in that way that makes me want to be part of the hard stuff.

So donating to the genetic sequencing fundraiser (which was not a financial burden on me) felt like a stand-in for that, like something I could do that might or might not help you survive, but would help with the hard stuff, at least for a moment. And I can see in your video that it did.

Once again, you have made me feel like I love you, and I thank you for that.
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Jay Lake
User: jaylake
Date: 2013-01-11 15:35 (UTC)
Subject: (no subject)
Thank you for this.
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User: horace_hamster
Date: 2013-01-11 20:37 (UTC)
Subject: (no subject)
Yes, this, exactly.
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Peter Hollo
User: frogworth
Date: 2013-01-11 16:00 (UTC)
Subject: (no subject)
We love you too, Jay.
I was absolutely blown away when I saw the sequencing fundraiser this morning and thought I'd missed some long-running thing, and then saw it had been up for THREE hours!, and then it made $20,000 only about an hour later.

I'm so glad there are so many other people out there who care, and I hope this can buoy your spirits for a while, as well as help towards a genuine improvement in your treatment.

Like others have said, I'm just glad to be able to help out in some way, over here on the other side of the world. My heart goes to my throat whenever I read these cancer posts of yours. Enormous kudos to the people who organised and contributed acts of whimsy, including my erstwhile collaborator Mr Gaiman, who I shall thank in person in 2 weeks.
x Peter
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User: torreybird
Date: 2013-01-11 17:00 (UTC)
Subject: (no subject)
Thanks for the opportunity to hear, read, and help you along this journey. Thanks also to those who use their talents to document and whimsify.

("to document and whimsify" may need to be my new motto.)

Most importantly, thanks that you keep fighting what only you can fight.
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User: martianmooncrab
Date: 2013-01-11 22:47 (UTC)
Subject: (no subject)
to pay for genome sequencing of my tumors

... which is a good thing, plus, they can find the Lake Sequence, which is what makes you such a good and prolific writer.. because we cant have one without the other..
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User: icedrake
Date: 2013-01-11 22:53 (UTC)
Subject: (no subject)
Jay, since the "sequence an SF writer" fundraiser has already hit the target, what does this mean the timeline of getting you cloned sequenced?
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User: mmegaera
Date: 2013-01-12 01:05 (UTC)
Subject: (no subject)
I am about as much the opposite of shocked as it is possible to be.

I think everyone but you saw this coming, Jay [g].
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frabjouslinz: chicken
User: frabjouslinz
Date: 2013-01-12 01:13 (UTC)
Subject: (no subject)
Love you, too. I'm so glad to see all the love and support for you.
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User: fledgist
Date: 2013-01-12 01:14 (UTC)
Subject: (no subject)
Jay, you're a nice chap and I'd like to see you around for a long time.
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Lethran: Fawn
User: gwyd
Date: 2013-01-12 07:08 (UTC)
Subject: (no subject)
I'm glad the kickstarter went so well.
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User: mizkit
Date: 2013-01-12 08:37 (UTC)
Subject: (no subject)
We love you, man.
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my journal
January 2014
2012 appearances