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Jay Lake
Date: 2013-04-10 05:45
Subject: [cancer] Here we go again
Security: Public
Tags:cancer, health, personal
Overnight, the last of this past Monday's bloodwork came in. This chart pretty much says it all. My CEA levels, measured as of this past Monday, compared to my levels since the beginning of 2012.

CEA_levels 2013-04-08

I more than doubled in a month, from 2.9 to 6.4. I now have higher CEA levels than I did when presenting three rapidly growing metastatic tumors last summer. Elevated CEA levels are not conclusive evidence of metastatic disease, but they are highly indicative, especially in my case. In my medical history, I have never experienced elevated CEA levels without there being tumor development.

My oncologist says we'll wait for the early May CT scan (four weeks from yesterday) before taking any further steps. I'm fine with this plan.

Not sure what the odds are that this presentation will be my terminal diagnosis, but they seem reasonably high.

Guess I need to write faster.

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Shefa: Paper friends
User: shefa
Date: 2013-04-10 13:27 (UTC)
Subject: (no subject)
Keyword:Paper friends
Crap crap crap.

I'm apparently all out of words, but most definitely not all out of feelings.

*sends hugs for when you need them

*sends yummy food and ninja swords and all manner of armor and weapons your way
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User: fjm
Date: 2013-04-10 13:36 (UTC)
Subject: (no subject)
Hugs. We do love you very much.
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User: keikaimalu
Date: 2013-04-10 13:46 (UTC)
Subject: (no subject)
Sorry to hear it, Jay.

How does the genetic tumor analysis play into all this? Is there a timeframe in which some useful and actionable data might emerge?

Keeping you and yours in my thoughts.
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User: threeoutside
Date: 2013-04-10 13:57 (UTC)
Subject: (no subject)
All's I got are more hugs. Sending them your way!
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Peter Hollo
User: frogworth
Date: 2013-04-10 14:05 (UTC)
Subject: (no subject)
Nothing I can say but sending huge and love as always.
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User: kshandra
Date: 2013-04-10 15:28 (UTC)
Subject: (no subject)
Keyword:Fuck Cancer
My icon isn't nearly loud enough for the way I feel right now.
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User: daveraines
Date: 2013-04-10 16:31 (UTC)
Subject: (no subject)
I'm very sorry, Jay, certainly for this news, and also for the uncertainty and anxiety it brings. Or rather, ramps up.
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Rhonda Parrish
User: rhondaparrish
Date: 2013-04-10 16:32 (UTC)
Subject: (no subject)

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User: alumiere
Date: 2013-04-10 16:52 (UTC)
Subject: (no subject)
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User: klwilliams
Date: 2013-04-10 18:01 (UTC)
Subject: (no subject)
Oh, fuck. I'm sorry.
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User: martianmooncrab
Date: 2013-04-10 19:10 (UTC)
Subject: (no subject)
I have issues when medical personnel call with ambiguous news, and then you have to wait for more tests, while in the meantime you have all this spare time to think of anything and everything while you are waiting.

fingers crossed for you.

.. my sister has to go back in for a redo on her thyroid biopsy, because they just arent sure that its all benign. The appt is in a week.
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Dave O'Neill
User: daveon
Date: 2013-04-10 20:10 (UTC)
Subject: (no subject)
Yeah, words don't really work in instances like this. Or if they do, I don't have 'em.
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Dan/Дмитрий: The Sign at the End of the Universe
User: icedrake
Date: 2013-04-10 20:12 (UTC)
Subject: (no subject)
Keyword:The Sign at the End of the Universe
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User: quaero_verum
Date: 2013-04-10 21:41 (UTC)
Subject: (no subject)
As others have said, there is nothing I can say.

Just hugs and thoughts.
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User: mysterysquid
Date: 2013-04-10 22:13 (UTC)
Subject: (no subject)
Bollocks. Fingers crossed and good thoughts your way.
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Submarine Bells: backlit
User: submarine_bells
Date: 2013-04-10 22:48 (UTC)
Subject: (no subject)
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User: a_cubed
Date: 2013-04-11 01:00 (UTC)
Subject: (no subject)
Ahhhhh, fuck cancer, again.
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User: joycemocha
Date: 2013-04-11 01:03 (UTC)
Subject: (no subject)
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amphigori: bfly
User: amphigori
Date: 2013-04-11 09:42 (UTC)
Subject: (no subject)
Crap, Jay :(

So sorry to read this.
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User: beth_bernobich
Date: 2013-04-11 11:11 (UTC)
Subject: (no subject)
Keyword:you suck
I'm so sorry the news keeps getting worse and worse. *hugs*
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my journal
January 2014
2012 appearances