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Jay Lake
Date: 2013-09-12 07:25
Subject: [cancer|personal] The panics go on
Security: Public
Tags:cancer, food, friends, health, personal, radiantlisa
So there was the recent issue with blood in my stool. Which seems to be innocuous enough, but still scared me into flashbacks.

Also, I've lost about six pounds since returning from New Zealand. I'm a big guy, and six pounds isn't much, but it's a mildly puzzling trend. In the past week, my appetite has also dropped close to nil. (This postdates the beginning of the slide in my weight, so the obvious causal connection does not apply.) The combination of these two things corresponds to the description of what I could expect at the beginning of my terminal decline. Both Lisa Costello and I have very much been fearing that the Regorafenib was failing. The fact that my body continues to adapt to this drug only reinforces that fear — for some chemo drugs, the intensity of side effects reflects the efficacy of the drug's action. High side effects, strong drug action. Low side effects, weak drug action.

Yeah, well.

Given that we have a scan next week, we're also wrestling with scanxiety. Lezli Robyn visiting is a fun distraction, but there's a big coil of mortal fear and dread of death swirling close to the surface. Which makes everything else hard to cope with. Especially fears such as the ones about the change in my metabolism and the possible loss of the drug effectiveness. Prior to the last scan in July, Lisa and I were pretty much at each other's throats with fear and stress, which is so not how our relationship works.

Then yesterday I realized that my appetite loss coincided with a recent increase in my Trazadone dose. A little quick Googling showed that there is a link between Trazadone use and appetite suppression. Which, while annoying, is orders of magnitude less scary than assuming I was hitting the skids with the cancer.

When the current drug fails, as it inevitably will, I'm back to having six to nine months to live. The countdown is on hold right now through the good offices of Regorafenib. But panics like the one we both had this week are emblematic of how tenuous my grip on health and life itself is. And next week's scan, like all scans, is an opportunity for me to play Russian Roulette with my cancer.

Sometimes the fear consumes us all.

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User: threeoutside
Date: 2013-09-12 16:04 (UTC)
Subject: (no subject)
*hugs* to both of you.
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User: fledgist
Date: 2013-09-12 23:08 (UTC)
Subject: (no subject)
Enjoy each day as much as you can, Jay.
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User: mmegaera
Date: 2013-09-13 00:14 (UTC)
Subject: (no subject)
So glad there's another good reason for the metabolism thing.
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User: joycemocha
Date: 2013-09-13 03:48 (UTC)
Subject: (no subject)

So I looked at the "Memos to the Author" today. Several common themes: they wanted to know more. Some of their writing was in direct contrast to the understanding they demonstrated in discussion. A number of them called it a story, but I think that's more reflective of them not yet having the appropriate and accurate terminology to discuss nonfiction rather than fiction. Some are very thoughtful and surprising.
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User: houseboatonstyx
Date: 2013-09-13 05:12 (UTC)
Subject: (no subject)
Might look up these organizations:


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