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Jay Lake
Date: 2013-11-02 06:22
Subject: [cancer] Side effects bingo slowly goes higher stakes
Security: Public
As I have recently complained, I am growing more affected by the Regorafenib. Hair loss, skin conditions, easier wounding, slower healing, localized infections of minor wounds, and so forth. It's also been the case in this cycle that the GI effects have grown worse.

Yesterday I had almost two dozen bowel movements. About half of them were fully productive, of the sort that would have been sufficient once or twice a day in my pre-cancer days. All of them were somewhat productive. Not diarrhea, in that I was not producing liquid stool or at high pressure. Just lots and lots and lots and lots of feces.

Simply considering time spent on the toilet, this was my worst GI day ever. Worse even than on the various intravenous chemotherapy regimens I have spent the last four years enjoying.

I have two different medications I can take to slow or stop this. But I'd spent the previous two days on those medications, bottling myself up so I could make the trip to Maryland. I cannot take them continuously or I become horrendously, painfully constipated. Plus, well, the stuff has to come out somehow, at some point.

So I hid in our hotel room yesterday and struggled with violent cramps, sometimes three or four times per hour.

This is gradually growing more and more difficult to tolerate. Given that my alternative is a fairly quick death, everything I'm experiencing is just the cost of doing the business of life. But it's making me weaker, more tired, and more physically stressed.

Fuck cancer.
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User: threeoutside
Date: 2013-11-02 15:42 (UTC)
Subject: (no subject)
Fuck cancer indeed.

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User: martianmooncrab
Date: 2013-11-02 19:35 (UTC)
Subject: (no subject)
*sympathy* .. I have IBS and I know my worst day is nothing to be compared to your worst day.

and then I can only think of nice soft, absorbent toilet tissue.. lots and lots of it...
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User: fjm
Date: 2013-11-03 11:28 (UTC)
Subject: (no subject)
I am so sorry. For reasons you know of I have experienced these symptoms and for this to the the *good* result is just horrendous.

I agree with the commentator re soft (balmed?) toilet paper. Many hugs.
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Agent Mimi
User: agent_mimi
Date: 2013-11-06 03:19 (UTC)
Subject: (no subject)
Agreed with the above: Softest TP you can find, and some of those wet wipes if they are gentle enough. A dab of vitamin A&D cream might help as well.

And fuck the hell out of cancer.
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