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Jay Lake
Date: 2013-11-09 06:19
Subject: [cancer] Walking through another portal in the hallway to death's door
Security: Public
Tags:cancer, death, health, personal, radiantlisa
Underwent my bimonthly CT scan yesterday. My oncologist forwarded me the radiology report a few hours later.

Not good.

Not instantly, deathly terrible, but not good.

Their comments, lightly edited for clarity and privacy:
There has been a small amount of growth in the lesions in the lungs and liver, no new lesions though. We can discuss the options, either continue on therapy thinking that the disease is growing more slowly than if off therapy, or look at Phase I options with [the oncologist coordinating trials]. Since the waiting list for Phase I is an issue, we can continue until something opens up.

What this means is that the Regorafenib is losing its effectiveness. The drug has not flatly failed me yet, but the excellent results we've been seeing have begun to reverse themselves. That trendline will not turn back around, that isn't how cancer drugs work. We have to decide whether and how long we want to gamble on partial effectiveness, versus moving aggressively into clinical trials.

In effect, we're back to where we were in June and July with my life expectancy being 6 to 9 months. The Regorafenib managed to stop that clock for a while, but the clock has re-started. If we're very, very lucky, we may find a trial that can stop that clock again. Lisa Costello and I see my oncologist on Monday to review our options.

At the moment, I am very upset and pessimistic. It didn't help that yesterday included the stress of the scan itself, wrangling with legal and disability issues, and a $4,000 bill for legal services in the mail.

This is another irreversible step on the rough path to my own personal extinction. Death has come another leap closer, and I can smell the gravedust on his breath.

I hate this.

Post A Comment | 10 Comments | | Flag | Link

User: radiantlisa
Date: 2013-11-09 14:58 (UTC)
Subject: (no subject)
You're still here today, and I love you.
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User: kellymccullough
Date: 2013-11-09 17:39 (UTC)
Subject: (no subject)
Bearing witness, sending entirely secular positive thoughts. Fuck cancer.
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User: martianmooncrab
Date: 2013-11-09 19:23 (UTC)
Subject: (no subject)
Since the waiting list for Phase I is an issue

one would think at this stage that there wouldnt be a waiting list.. cuz yanno.. waiting..
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Angie: New Me
User: aiela
Date: 2013-11-09 22:10 (UTC)
Subject: (no subject)
Keyword:New Me
I'm sorry to hear this. Sending love.
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User: fledgist
Date: 2013-11-09 22:57 (UTC)
Subject: (no subject)
That you are still on this side of the grass matters.
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User: twirlgrrl
Date: 2013-11-10 05:57 (UTC)
Subject: (no subject)
I'm very sorry. I hate it too.
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Rory Miller
User: Rory Miller
Date: 2013-11-10 10:21 (UTC)
Subject: (no subject)
Jay, it was an honor and a blast being on the panel with you. Fuck cancer and fuck death. You are a tough, smart and formidable human being. When we agree, you are an honorable friend and when we disagree you are an honorable adversary and there is nothing I value more. I don't believe in prayers so there is nothing I can send you but my respect. You have that to the Nth degree.
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User: mysterysquid
Date: 2013-11-10 10:47 (UTC)
Subject: (no subject)
Ah, balls. Good thoughts your way.
Reply | Thread | Link

Lethran: Crotian
User: gwyd
Date: 2013-11-11 09:30 (UTC)
Subject: (no subject)
I'm sorry.
Reply | Thread | Link

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